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  2. Is it possible that i can have weeks where the IBS is "not as bad" and other weeks where it's unbearable? because last week was pure torture, but this week it doesnt seem as bad. Sometimes my pain seems really inconsistent to where even just a sip of water will hurt one day and another day it wont hurt at all?? I've been trying to eat more low-FODMAP foods but some days it seems even the low-FODMAPs are hurting me no matter what!
  3. Yesterday
  4. Hi Sunny, So sorry you are going through this, I know how unbearable it is. My saga continues. Eight days later, and to be honest, I have gotten very little relief. Nausea is under control so that is a plus. Almost no movement after the first four days of Misoprostol and I know that everything is hardening. Sunday night I couldn't take it any more. Knowing I would be seeing the Doc in the morning anyway, I took three ducolax. It worked and I felt largely but not completely empty. Progress. My Doc is away so I see someone else who was very nice. He says I am doing everything right. He wants me to continue the Miso and the Ducolax for three more nights. He says that should get everything moving along. Then he says I should go back on the Linzess, that sometimes the body just needs a reset and then it works well again. I tell him about the exhaustion but he still thinks I should resume it. He says to try not to be discouraged. I may end up on daily Miso and Linzess and supplement with softeners as needed. He said he had no more to add. Not really happy about it. The Ducolax is continuing to work, and I get a modicum of relief, but feel far from empty and very uncomfortable the rest of the day. I take the Ducolax at night and get very little, if any, quality seep, only adding the exhaustion. I return to my Doc on Friday to discuss all of this. I have been reading voraciously about Gastroparesis. I was amazed to see that Lyrica is commonly proscribed for this. I've been telling doctors for twenty years that I have undiagnosed Fibromyalgia but none have taken it seriously. I match 25 of the listed symptoms! They want me to have five cervical laminectomies which I will not do, so they gave me Tizanadine to force my neck to unclench and Hydroxyzine Pamoate as a sleep aid. Anyway I discovered that the Hydroxyzine, when taken with the Tizanadine, does wonders, except that my hands remain numb. Hmm. Hydroxyzine is for anxiety! Bingo. Although I haven't taken it for a while, they put me on Welbutrin to eliminate anxiety caused by Mild Cognitive Impairment which itself is caused by diabetic neuropathy and is yet another symptom of Fibromyalgia known as "Fibro Fog" that Lyrica treats. So, apparently Lyrica treats all of this, and may also help the numbing in my hands, something else for which it is proscribed. I really think I should try Lyrica, at least until we know if it works or not. It is worth a shot. I am also going to ask him to register me for a medical marijuana card for Mississippi. Even https://www.nimh.nih.gov says that one is a no brainer. The THC provides immediate relief when inhaled, slower relief if ingested. I will check in again to update. I hope you will let us know how you are doing too. God Bless! Robert
  5. I just started taking Linzess for about a week and today it feels as if I'm running on fumes. I'm so sleepy 😴 🥱 that I can't bare it anymore. For the first days I was ok but I guess it was slowly creeping up on me but today is like no other. That's why I ran on the internet to search for others who have and are experiencing the same thing with the medication. I'll have to leave it where it's at because I need all the little bit energy I have to function everyday. Thanks for all the great submissions for this medication.
  6. Last week
  7. I can understand how you feel. I know how it's to deal with chronic diarrhea. It's really awful
  8. and are there even any good apps that don't scam you for money just because you're trying to survive your IBS because all the apps i've seen with food scanners just want you to pay 60 dollars a month to have any convenience with surviving your IBS. I can't take this anymore. Tired of everyone trying to take advantage of our pain and suffering
  9. why is it that even when i try to eat things that are supposed to be low-fodmap, completely avoiding everything thats not low-fodmap then I still get this horrible heartburn pain anyways? I feel like I'm being punished just for trying to live. Even if i try to eat the right things, I dare drink water to not dehydrate to death and then i have the unbearable pain all over again. everyone else can drink the water so it can't be something wrong with the water... I'm so tired of this. Will i ever be able to eat any of the things i used to again even if its a once in a year kind of thing? I'm so tired of all of this
  10. Laneyp, your story and description sounds like I wrote it. I feel I'm getting worse with age too. My Gastro doctor doesn't seem to have answers other than prescribing meds which stop me from going until I ease off the meds and let the cycle return again. Having Cdiff 4 times in 5 years has likely added to your issues. Most people with Cdiff develop post-infectious IBS which could also take time to heal from. Wondering if you have ever had an MRE (MRI Enterography) which would look for IBD in your small bowel? You can't see that area with a colonoscopy or gastroscopy. Having IBD ups the risk for getting Cdiff without being on an antibiotic. Age also ups the risk.
  11. I have had stomach problems all my life. Either can’t stop going or can’t go. I had cdiff about 4 times over the last 5 years, no idea how it started, never took antibiotics. But I would say the last few months I have had bad stomach pains and burning bowel movements, well actually burning diarrhea. I will be like that for a couple days then not be able to go for days and then start the cycle over again. I turn down invitations and very rarely go to restaurants . I had a colonoscopy/endoscopy in February of this year, nothing significant, found a small ulcer but nothing too bad. The medication I take to stop going will block me up and maybe I will pass a couple “marbles” for a few days then start with the cramping, hard stomach and mushy poops (consistency of oatmeal) . Sometimes I even get nauseous and get the dry heaves or throw up. I don’t know what to do. I have been tested for ciliac , crohns and other things, always normal. The NP I saw in the gastro office suggested an anti depressant. I also can’t have milk or cream and salads aren’t my friend either. Anyone have the same problems, I just turned 60 and feel I am getting worse with age
  12. Absolutely! This is a crazy disorder, with some afflicted only for a moment in time due to trauma and then those who never find relief. Providers can do just so much once they establish that we don't have a 'life threatening" illness. The rest is really up to us to see what works.
  13. Thank you for sharing what has worked for you. It's so obvious now, but hard to see that you actually might have been IBS-C rather than IBS-D. I have heard doctors describe some patients like this. Constipated-constipated... and then diarrhea followed by constipated-constipated... and the cycle repeats.
  14. Bonjour Leïla, I have read your your posting. I'm very sorry to read that you are having such terrible abdominal pain that is new. Dealing with anorexia and bulimia is very difficult and very complicated. I understand that you have abdominal pain whether you eat or don't eat. That seems to be something that a lot of people who have anorexia suffer from; however, if this new abdominal pain is also causing other symptoms like black stools or constipation, nausea and vomiting that is new or blood tests which are abnormal, than you have to try and convince someone that this isn't the usual pain. I also understand your fear of speaking to doctors. Your situation sounds like you do need to consult with doctors as it is going to be very hard to manage the abdominal pain while also dealing with anorexia and bulimia. I hear from a lot of people who are in a similar situation as you. There is no easy way to treat this. Usually a psychiatrist that understands how the digestive system works is the best person to prescribe something that will help with the usual abdominal pain and help with your thoughts related to anorexia and bulimia. I am here to help talk through anything. Please let me know how I can help. Jeff
  15. I truly understand the difficulty you are having with food. Anorexia is a very serious condition. A Dietitian is really the best person to work with to work in order to increase your appetite and find foods that don't aggravate you. Anorexia itself causes the digestive system to move very slowly which causes a lot of abdominal pain, bloating, constipation and a general feeling of illness. It's a tough situation. You could look at the Monash University FODMAP application to identify foods high in FODMAP. That's not to say that you should eliminate those foods high in FODMAP. You have to determine how much of each food you can tolerate. Apple sauce is gentle yet it can cause bloating and a looser stool in some people. If you are struggling with constipation then it might be okay for you.
  16. Because i was in light hypoglycemia (0,59) and was feeling too unwell due to struggling a lot eating(because ibs makes it hard and also triggers more my anorexia) I tried eating a little but with worry Right now, because i was shaking too much feeling dizzy and really weak, i tried eating some green beans with a little bit of carrots and potato, all this was boiled then put in the oven not to eat it cold as my body is really cold I also added a little bit of thyme and salt as its supposed to be ok to digest i read online My mom wants me to eat an sugar free Apple sauce she brought me btw becauseshe is worried, my worry is, is fructose ok? Do you think it can triggers bad pain? Im struggling more and more to eat as my ibs makes my anorexia very present ( i suffer from anorexia and bulimia since iver 10 years, ibs started rencently since 1 month) Any food you would be sure are ok and would not trigger pain to suggest? I have a lot of food my anorexia makes impossible for my mind to handle eating so dont hesitate to give the more example possible Thank you so much for any help I hope someone respond im so tired please help
  17. Leïla molié

    30 ago diagnosed and getting worse

    Yes my pain has started 1 month ago and it feels like its nonstop even tho ofc the pain can be more severe and high at some period but it feels like the pain is always there and its so tiring mentally, and the antispasmodic ive been given doesnt calm it either
  18. Leïla molié

    IBS and resulting anxiety

    I feel you so much, wishing you the very best and to suffer as less as possible
  19. Hello, Ive been diagnosed with ibs also i have a lot of others health issue im suffering from dince a long time that makes dealing with ibs too difficult and scary to me. First the fact I cant go out because of my social phobia severe anxiety and body dysmorphia makes it too hard to see doctors i can see doctor coming at my appart luckily my doctor is supposed to come on monday and she will make a letter so i can see a specialist a gastro doc. Problem of course is seeing the specialist would need to me to go out at the hospital but i will see how things will go one stress at a time i see my doc at my appart monday to start. The pain since one month, unusual because ive been having lot of pain to my belly and digestive system since i suffer from eating disorder (anorexia and bulimia) since 10 years but never like this, this is why despite my social phobia and anxiety i had to call the emergency i saw one doc two times from the elergency then managed with courage to call my doctor too in fear she will ask me to come but i had her on phone znd on video once and like i said she will come on monday. Honestly its terribly hard as alimentation and food was already a torture for me because if my eating disorder and this makes it even more difficult and scary, the fear of the pain and even more bloating triggers my anorexia and makes eating evrn more difficuly. I almost dont eat and push away the time to eat. Yesterday evrning i had to eat one and a half boil carrot during the night because i was feelint yoo dizzy from not eating but i was scared it could possibly hurts as im just starting to be adviced by the doctors and whrn making research too i was even more discouraged as food that triggers pain can vary from one perdon to another do i end up in a fear that potentially any food could trigger it. And as my anorexia already makes me unable to eat a lot lot of food now im even scared to eat food my anorexia allows me to eat. Also ifk if its important to mention but im also bloated and get cramps with my empty stomach i noticed as i spend long period with eating but eating makes it more more painful and hard to handle. The one and half carrot went ok i think as i still was boating and getting cramps but i feel it was the same as when i was on empty stomach. The doctor to start with prescribed probiotic i started yesterday adviced me what food to eat (boiled veggies like carrot potatoes green beans, grilled meat and fish, bananas, apple sauce, rice) my mom goot so mad at me because there are food im scared to eat or cant eat like she wanted too buy me burger steak to grilled but thats something i dont manage to eat also the white rice is complicated as my mind only allows whole wheat cereals, yes i have a lot of food phobia and tooo hard to handle as here since many years, also my mind allow myself to eat fish but it get me very nauseous lately as when im in restriction certain food makes me nauseous eggs are part if it too but i hope in the future i could try it tho.. I write here in the hope to get little advices or even supportive words as im really not handling well, its ridiculous but i even self harmed to think less about my cramps and pain, self harming is a habit and addiction i had since very long and when i font know how to handle the pain i often do it desperatly hoping to relieve myself, tho usually i do it to reliece myself from mental pain and not physical pain like here. So it relieves on the moment but i cant self harm non stop and i know its not a solution or good. Spasfon and paracetamol doesnt calm the pain at all ive started meteospasmil since 2 days it doesnt seem to relieve it either but i keep taking it in hope it does Sorry for my bad english as im french but was hoping for maybe more possibilities of feedback and help here If you have any question about what i wrote dont hesitate to ask, im very thankful for any advice, im not asking for medical help here but more advice from someone familiar with ibs and advice about their experience and all Thank you so much for reading
  20. For years, I was treated as if I have D-predominant IBS, never finding any relief because everything I was instructed to do made things worse, it would seem. On a whim, last year, I started treating myself as if I am C-predominant. I always sort of suspected, because the diarrhea only seemed to follow a long pause (days) between stools and usually was real hard stool followed by full blown liquid. My issue was described as a hyperactive gastrocolic reflex causing the urgent runs to the RR after eating. I can agree that is the case because if I eat slightly more than it can handle, I get a nasty reaction. I definitely don't agree with D-predominant IBS. I have been following this routine religiously for almost 6 months and not one single episode of urgency, constant feeling of calm in my intestines and don't fear car rides or social events anymore. I seem to have started living. We truly must find what works for us because I think providers have their hands pretty tied with trying to cure our lot. Now, what I do may not be right for someone else, and you have to find your safe approach--always check with your doctor and make sure it's ok for your body. But, this is what I do and it works like a freakin' charm! This is not a claim for cure, just my story of relief. Every night, I take the following at dinner time (about 5-6PM): Magnesium glycinate 200 mg x 2 capsules 1 probiotic 1 Citrucel tablet 4 oz prune juice Guaranteed....within 3 hours, 2-3 trips to the restroom to produce a meaningful stool and the entire next day free of any symptoms, whatsoever. Stool every day and keeps the tract moving things forward. I feel for every one of you who suffer the debilitating symptoms of this nasty disorder. I have been there time and again. Just enjoying my current situation. I wanted to share my success (hoping it sticks, but geez...6 months of freedom feels like a lifetime), show that there is hope for a little relief. I will probably start dabbling with cutting the mag in half and see what happens. I can always return to what's working.
  21. Left out something. A shout out to the people at Abbie Assist. Thank you! You supplied a year of Linzess to me at not charge because of our financial situation and I am greatly indebted to you for this. Compassion seems to be a rare commodity!
  22. Hi! Thought I would weigh in on the fatigue issue. Diabetic neuropathy is responsible for slowly destroying every organ in my body including my brain since I was diagnosed with Type Two Diabetes in 2001. The only organ not affected is my eyes. I truly empathize with anyone who is suffering from Gastroparesis because it is a very long and very difficult road. Like everyone else, I have tried everything. The last week or so has been a living hell. I have been taking Linzess for a year. At first it was like a miracle drug and I got instant relief in the form of explosive liquid diarrhea. Yay! I'll take it! However, emptying would become inconsistent and many times I would take it and nothing would happen at all. Bummer. When this would happen, I would take Ducolax softeners that night before bed. This worked well for a couple of months. Then, last week, I woke up after the Ducolax, took the Linzess,and proceeded to drink my usual half water, half prune juice mixed with 4000% of the RDA of vitamin C powder. OK I wait. While I am waiting, I get extremely nauseous. Wow, that is a new development and I fight off vomiting. The urge comes and I get the usual explosion. Then I am overcome with the desire to vomit and can't control it. Crap! Horrible convulsions, pain, and dry heaves. White water in the toilet bowl I am now hugging. It is the entire last dose of Linzess. Needless to say, this freaked me out. Am I supposed to vomit now every day? Why is this happening to me? Did a lot of research. Could it be a bezoar? My symptoms did not match up with that so I rule it out. Finally, I find the only diagnosis that makes sense. 1% of type II diabetes patients develop "secondary, chronic intestinal pseudo obstructions," in essence a blockage that is not physical but rather a consequence of diabetic neuropathy. So, now what? Gastro can't see me for a month. Wow. I call my GP. He prescribes Misoprostol which I start that night. This med is four times a day. Next morning, I vomit again and hope it will be the last time. Then an hour later, the new drug works and I have a very small movement. Amazed to see for the first time in years, solid matter in my waste. Really? I am maybe going to start having well formed stools? Sounds great! I have been on it now for four days and no longer feel any nausea. This morning, I wake up at seven and immediately have a bowel movement and again much of it has form. So far, one of things I like most about this drug is that there is no "ritual" involved like there was with Linzess. I would wake up and take it with a glass of water. Then I would go back to bed for up to an hour, taking care to only lie on my right side. I came across this method in an Israeli medical journal. They found lying on your right side significantly reduces the time it takes to ingest any med and it can take several times longer if you take it any other way. Try this method, you will be pleasantly surprised! Another positive aspect is that you can take it on a full or empty stomach unlike Linzess, which requires an empty stomach and requires not eating or drinking anything for at least 30 minutes. The new drug regimen is much better with no such restrictions. What have I learned so far? I am pretty sure I will have at least one movement every day, first thing in the morning. If that is all I get that day, it is fine, not like before where I was extremely anxious about not getting that empty stomach feeling all day. Totally different now. I am not sure I am getting a full emptying or not with the Miso because the process is so different with Linzess, where, when it worked, I would physically feel a totally emptying, but those days were rare, and on most days with Linzess I would still feel the urge to go all day. This is not happening at all now. Instead, I go, and that is it. No more bloating or pain and my stomach has completely stopped sounding like a freight train. Instead it feels settled. I started by mentioning fatigue. I noticed something yesterday and it seems to be continuing. I stopped being tired! I was literally nodding out several times each day. All of my energy was going into digestion I guess. Anyway, I have an entirely different mental altitude from not being tired. I am looking towards the future with complete optimism instead of begging God to take me home! The return of optimism after a year of total depression is a hidden blessing. Can't believe this is not listed as a major side effect. I should mention that I can only take the Miso for 12 weeks. I will cross the next bridge when I come to it. God Bless You All! Robert
  23. Neurogastroenterol Motil. 2022 Sep 30:e14483. doi: 10.1111/nmo.14483. Online ahead of print. ABSTRACT BACKGROUND: Little is known about willingness to pay for medications among individuals with irritable bowel syndrome (IBS). METHODS: We collected demographic, gastrointestinal symptom, psychological health, quality of life, and healthcare usage data from 752 adults with Rome IV-defined IBS. We examined willingness to pay for a hypothetical medication in return for improvement in IBS symptoms using a contingent valuation method, according to these variables. RESULTS: The median amount of money individuals was willing to pay was £1-£50 (IQR £0-£100) per month for a medication with a 100% chance of improving IBS symptoms. Women, compared with men, (92.7% willing to pay "£0," 89.8% "£1-£50," 87.3% "£51-£100," 78.9% "£101-£200," and 78.5% "more than £200," p = 0.008) were less likely to be willing to pay for a pill with a 100% chance of improving IBS symptoms whilst those with an annual income of £30,000 or more (12.2% willing to pay "£0," 25.2% "£1-£50," 33.5% "£51-£100," 40.2% "£101-£200," and 35.1% "more than £200," p = 0.002) were more likely. We observed a higher willingness to pay among those with lower IBS-related quality of life (p = 0.002 for trend). Of all 752 individuals, 92.7%, 74.5%, and 58.0% would be willing to pay for a medication that would give them a 100%, 50%, or 30% chance of improving IBS symptoms, respectively. CONCLUSION: Patients with IBS are willing to pay for medications which improve IBS symptoms. Future studies should investigate the relative importance of medication pricing, efficacy, and side effect profile among individuals with IBS. PMID:36178331 | DOI:10.1111/nmo.14483 View the full article
  24. Neurogastroenterol Motil. 2022 Sep 30:e14477. doi: 10.1111/nmo.14477. Online ahead of print. ABSTRACT BACKGROUND: Stress is an exacerbator of irritable bowel syndrome (IBS) symptoms, and anxiety and depression are co-morbidities. Bifidobacterium longum strains 1714® and 35642® attenuate stress responses in healthy people and reduce symptoms in IBS, respectively. Here, we explore relationships between the psychological and visceral effects of the two strains (COMBO) in IBS subjects and biomarkers of stress and inflammation. METHODS: We recruited 40 patients with IBS (Rome III) and mild to moderate anxiety (HADS-A) and/or depression (HADS-D) and 57 asymptomatic female controls with low or moderate stress. IBS patients were fed COMBO (1 × 109 cfu/day) for 8 weeks with an 8-week washout. IBS symptoms, psychometric measures, salivary cortisol awakening response (CAR), and plasma inflammatory biomarkers were assessed every 4 weeks. KEY RESULTS: Compared to healthy controls, IBS subjects had a blunted CAR. Treatment with COMBO restored CAR and improved IBS symptoms compared to baseline during the treatment phase. The COMBO reduced HADS-D, HADS-A score, and TNF-α, while sleep quality improved significantly from baseline to the end of the intervention. Surprisingly, these parameters improved further once treatment ended and maintained this improvement by Week 16. CONCLUSIONS AND INFERENCES: These findings suggest that the stress response is a major driver of IBS symptoms. The time course of the beneficial effect of COMBO on IBS symptoms suggests that this is achieved through a restoration of the stress response. In contrast, the time course of the effects of COMBO on anxiety and depression in IBS paralleled an anti-inflammatory effect as indicated by a reduction in circulating levels of TNF-α. PMID:36178333 | DOI:10.1111/nmo.14477 View the full article
  25. Clin Gastroenterol Hepatol. 2022 Sep 26:S1542-3565(22)00917-X. doi: 10.1016/j.cgh.2022.09.019. Online ahead of print. ABSTRACT BACKGROUND: Irritable bowel syndrome (IBS) is a pain disorder classified by bowel habits, disregarding other factors that may influence the clinical course. The aim of this study was to determine if IBS patients can be clustered based on clinical, dietary, lifestyle, and psychosocial factors. METHODS: Between 2013-20, Mayo Clinic Biobank surveyed and received 40,291 responses to a questionnaire incorporating Rome III criteria. Factors associated with IBS were determined and, latent class analysis, a model-based clustering, was performed on IBS cases. RESULTS: We identified 4,021 IBS patients (mean 64 years; 75% female) and 12,063 controls. Using 26 variables separating cases from controls, the optimal clustering revealed seven latent clusters. These were characterized by perceived health impairment (moderate or severe), psychoneurological factors, and bowel dysfunction (diarrhea or constipation predominance). Health impairment clusters demonstrated more pain, with "severe" cluster also having more psychiatric comorbidities. The next three clusters had unique enrichment of psychiatric, neurological or both comorbidities. The bowel dysfunction clusters demonstrated less abdominal pain, with diarrhea cluster most likely to report pain improvement with defecation. Constipation cluster had the highest exercise score, consumption of fruits, vegetables, and alcohol. The distribution of clusters remained similar when Rome IV criteria were applied. Physiologic tests were available on a limited subset (6%), and there were no significant differences between clusters. CONCLUSIONS: In this cohort of older IBS patients, seven distinct clusters were identified demonstrating varying degrees of GI symptoms, comorbidities, dietary, and lifestyle factors. Further research is required to assess whether these unique clusters could be used to direct clinical trials and individualize patient management. PMID:36174942 | DOI:10.1016/j.cgh.2022.09.019 View the full article
  26. Aliment Pharmacol Ther. 2022 Sep 29. doi: 10.1111/apt.17239. Online ahead of print. ABSTRACT BACKGROUND: A gluten-free diet reduces symptoms in some patients with irritable bowel syndrome (IBS) through unclear mechanisms. AIMS: To assess the effects of gluten-free versus gluten-containing diet on symptoms and the gut microenvironment, and to identify predictors of response to the gluten-free diet in IBS. METHODS: Twenty patients with IBS and 18 healthy controls (HC) followed a gluten-free diet during two 14-day intervention periods where they sprinkled either gluten (14 g/day) or rice flour powder over their meals. Primary outcomes included effects of the interventions on IBS symptoms (IBS-SSS) and bowel habits. Secondary outcomes included effects of gluten-free diet on faecal microbiota and metabolite profile. RESULTS: IBS symptoms improved during the gluten-free (p = 0.02), but not the gluten-containing period, with no difference between the interventions. IBS patients reported fewer loose stools during the gluten-free intervention (p = 0.01). Patients with IBS and HC presented distinct metabolite profiles based on the effects of the gluten-free diet (p < 0.001). True responders (reduced IBS-SSS by ≥50 solely after gluten-free period) and non-responders were discriminated based on the effects of the gluten-free diet on the microbiota (p < 0.01) and metabolite profiles (p < 0.001). The response to the gluten-free diet could be predicted by the metabolite profile before the intervention (p < 0.001). CONCLUSIONS: A gluten-free diet may influence symptoms in a subset of patients with IBS, with a particular effect on bowel habits. A gluten-free diet seems to impact the gut microenvironment. Responsiveness to the gluten-free diet may be predicted by the metabolite profile. CLINICALTRIALS: gov: NCT03869359. PMID:36173041 | DOI:10.1111/apt.17239 View the full article
  27. Pubmed-Diagnostic yield of colonoscopy for organic disease in irritable bowel syndrome and its risk factors: A meta-analysis http://dlvr.it/SZ9zpk (Feed generated with FetchRSS)View the full article
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