Welcome and Newly Diagnosed
This is the place to start with introductions for new members with motility problems.
You've arrived at a community for IBS Patients created by the Founder, Jeffrey Roberts, who also created the very first IBS website and community on the internet.
I began my work in IBS in 1987 when I was involved in a local support group for IBS sufferers and then launched my first IBS website in 1995.
Our community is a safe space to discuss gastrointestinal diseases, to offer one another support, and to share experiences and proven coping strategies. Members are encouraged to speak freely about problems, concerns, frustrations, and to contribute their helpful hints, information, encouragement, and support. We never expect anyone to volunteer any information they wish to keep private.
I hope knowing there are other patients just like you who have IBS, means you are not alone.
Jeffrey Roberts MSEd, BSc, Founder
IBS Patient Support Group
342 topics in this forum
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Hello all I suffer from numerous illness, Graves disease, Heart disease, Raynauds Disease, Restless Leg to name a few but my IBS is worse than all of them combined, i suspect tho not confirmed that i also have leaky gut issues as i get odor despite being extremely clean, Difficulty in the UK is, medical experts dont really accept leaky gut exists in the same way they dont accept Long Covid, pretty backwards health service in the UK. Anyways i suffer IBS, i dont know really what for except mainly C, i get very small amounts when i go to the loo, what i describe as Rabbit Dropping symptom, quite awful, that will go on maybe 4 or 5 days like that then suddenly without warn…
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I am new to this website. I was diagnosed with a “spastic colon” around 1980 when I was 27. I am now 72. At first, I had episodes occasionally. But, it has gotten much worse. I never have a BM now without cramping and pain. I have tried Linzess, Trulance, and most recently, Amitriptyline which worked for 9 months , then stopped working. I have followed the FODMAP diet and gone to therapy. I only drink water, watch what I eat, and eat very small portions when I do eat. I exercise regularly. I have no appetite and I dread eating because I know it will cause me pain later. I used to have IBS-D but now I have IBS- C or a combination of both. I am curious to know whether othe…
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Hi everyone - Im new here - I have had IBS for 20 years or more. As im getting older its getting harder on me. I have days were I go and go the bathroom like I took a laxative. Im so stressed out - its effecting me Im edgy - nervous and feel like I always have to go. Now I have hemmroids that are bleeding. Is anyone else going through this
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I started having ibs symptoms back in April. It started out with a mild pain slash burning in my left rib by my stomach. Now it’s become a non painful tingle in my back right behind my stomach. I’ve just wanted to check and see if anyone else has had a similar feeling. My symptoms of movements go back and fourth a majority of the time from solid to diarrhea
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HI. I've always had a nervous stomach and strange symptoms. The Dr just gives me omeprazole and famotadine at night. I had some stomach lining irritation in December and also had colon polyps removed and had my gallbladder out in Feb. I was sick for a long time thinking it was just ibs. I was not having bowel movements for 10 dats or more ar a time and then diarrhea . I am now having bowel movements regular but it hurts! . I'm always cramping. I feel like I have a knot I my gut at times and it happens at night . . I wake up and feel inhave ti have a bowel movement but it takes hours I'm cramping and my stomach is gurgling the whole time. I lean in the sude of constipa…
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Hi everyone, I have been struggling with my ailment for handful of yrs. It manifests as IBS-C normally does. I underwent an EDG, HIDA scan, and Colonoscopy all this yr to check for everthing. I’ve landed in the hospital multiple times for other things besides this. Bad Colitis infection once. It’s extremely disruptive @ work, had to file for FMLA (intermittent) So my dilemma is I suffer from VICIOUS attacks that consist of horrendous crippling pain, vomiting, chills, fever, and when my body is done torturing me… diarrhea. I refer to them as episodic flareups that happen 3-4 months. Rest of the time I can’t go without the assistance of Mag Citrate. My body physically won’t…
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I was diagnosed IBS just a few days ago. Now the gastroenterologist wants me to go to an IBD clinic. Anyone else ever have this experience? The pathology report says negative for colitis. So why would I go to an IBD clinic?
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Hi everyone, I'm hoping someone can shed light on my symptoms because I'm at a loss. I've typically had runny stool in the mornings for as long as i can remember. It never was an issue until I started waking up in the middle of the night with abdominal pain (consistently at 4:30am) and then I cant get back to sleep because of the discomfort and gas. The nighttime wake ups have been going on for around 2 years now; my doctor says it's IBS or IBD. I've done the following: - fibre supplements; low FODMAP diet, taking Buscopan (it wasn't helpful), I exercise, meditate, I've taken a course of medication for SIBO (that seemed to help for a few weeks before reverting to ea…
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Hi, I'm new here. I've always had stomach problems, for a long as I can remember. I carry all of my stress in my gut. As I've gotten older (50 next month) it's gotten worse. Recently dx with IBS, combined type. I do all the things recommended, plus daily meditation and therapy. I've researched the heck out of IBS just to make sure I'm doing what I can. When I have symptoms, it messes with my mental health REALLY BADLY. I was dx with depression about 25 years ago and take medication that does work, thank goodness. But when my stomach starts to hurt, I get such extreme anxiety, which of course worsens the IBS and then it becomes a loop of a nightmare. I get nausea wit…
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I’m recently diagnosed with IBS and have known that I have diverticulitis as well Due to treatments such as Xafaxan and some antibiotics I took late last year due to the pain in my side and intestinal discomfort along with getting bronchitis, I ended out with Trush in my mouth and esophagas. I’m on my 2nd round of treatment for the Thrush which was brutal. I’ve tried Linzess, and Lapiprostone and it’s just not the solution and keeps me tied to being near a bathroom too much of the day. I’m trying to get a grant for Motegrity since my insurance doesn’t cover it and it’s very expensive. Has anyone tried it and had success? I’m 72 and already deal with fibromyalgi…
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Hello everyone, I did a search to find this group. I'm hoping to gain a compassionate ear and maybe some helpful suggestions. I have had IBS manifested with uncontrollable diarrhea. I have no warning to get to a bathroom. I live in fear of mess is causes me. My husband and I are leaving to fly 9.5 hours nonstop to the UK and I am so afraid I will have an accident on the plane. Are there any on here that have this type of IBS? And what have you done to treat this humiliating problem. Thanks, Becky
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Busted wanted to join and see if there is anyone out there struggling with ibs like me ? How do u manage ?
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I started having lower abdomen discomfort and diarrhea in the Summer of 2023, my symptoms went away and then returned in March 2024 after having strep and a round of antibiotics. Those symptoms having continued with occasional red blood in the stool. My stool is between liquid to soft stools constituently, I have had several ultrasounds, CTs, coloscopy and endoscopy that were all clear working with my primary and GI doctor. The GI doctor diagnosed me with IBS-D. I have also had GI testing done by Genova Diagnostics and it showed elevated bacteria in firmicutes phylum and proteobacteria phylum, but my doctor did not order SIBO testing. I started having pain around my …
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Nice to be part of this forum;I’m Frank retired US Navy living in Spain,I was diagnosed IBS in 2011 after a severe Diarrhea episode one night, was also bleeding light blood and always was struggling with my stomach problems. They did a colonoscopy with a biopsy and showed IBS after all these test. I had to manage a new life, no sodas, no junk food, I remenber the Doc words when I asked how do I know what to eat or not to eat? he replied...you can´t...you just have to play with the food and see what causes you bad IBS. I quit sodas, mexican, changed into heatlhy food, water everyday, and it helped but...not 100%. Problem is I developed Hypocondriac disorder. Everything lit…
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I was diagnosed with a spastic colon in 1983 and have lived with it since then taking Lomotil on a daily basis to control my diarrhea. I went thru a series of tests at a local hospital several years ago thinking technology was newer and they would have some recommendations for a treatment. After months of testing, they said I have a spastic colon and to continue with my existing treatment. Being retired for a dozen years and just hearing a friend having a similar issue, I decided to find a support group and possible find others with the same issue. I am very active on the golf course almost daily and know what I can eat the night before for dinner to somewhat control…
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I have been having constant low grade pain in my abdomen for some time. I have had a number of tests including a colonoscopy and endoscopy last week, 2 CT scans in the last 8 months, stool test, urine test, various blood tests (including FBC, inflammatory markers and various tumour marker tests) plus physical examination by my gastroenterologist. In terms of anxiety levels I am 10/10 which is impacting on my quality of life. My diagnosis is irritable bowel with severe anxiety. I find it hard believing that there isn’t something that has been missed. Thoughts?
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I am messaging on behalf of my husband who has had SEVERE debilitating colon cramping for the last 9 months. Initially no NHS or private doctor could work out what it was, after many diagnostic tests we have concluded that it is colon cramping from the minute he wakes up untill he sleeps. This is an extremely debilitating condition as it effects every aspect of his life and he is unable to do anything. No oain relief medication helps. He has just been prescribed dicyclomine which takes the edge of the pain but doesn't take away the pain completley. Is there ANYONE out there who can provide any advise on this condition and any cure,thankyou.
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Hi I am new to the group. I have slow transit constipation and pelvic floor outlet dysfunction. I have been treated with linzess and amitiza and am now taking senna and miralax trying to get things moving. Unfortunately with so much diarrhea I can’t leave the house and my formerly active lifestyle has all but disappeared. Friends have stopped calling and I am finding myself getting discouraged. Is there any light at the end of this tunnel. Dies anyone recover?
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Has anyone tried inulin. It worked for me for a while, but now find I am allergic to it. Has anyone tried Galactooligosaccharides (GOS) and does it work for them?
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Some background info: 54 y/o male with no past GI issues at all. I've never had a problem eating whatever I wanted and have never had any issues with spicy foods or any kinds of foods. 14 months ago we moved from the U.S. to Italy and about 4 months after moving I started having GI issues. Our diet really didn't change much. It started with bloating and pain in my lower abdomen on my right side and it seems like anything I'd eat would cause my lower right side to hurt. Occasionally my lymph nodes will become tender and my stool is either diarrhea or soft...never constipated. I've had ultrasounds, CT scan, stool sample tested and countless labs. The only …
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Dear community, I am a doctor that put myself on Bactrim DS for 3d for a simple UTI in 07/2024. Needless to say, I ended up hospitalized for five days with severe dehydration and relentless diarrhea. Working diagnosis was Severe antibiotic intolerance that unmasked IBS-D. I have been on a low FODMAP diet with improvement but I have not ever been symptom free for more than 2 weeks. I am miserable. My GI doctor wants me to try Xifaxin. But I am SO scared because I am SO medicine sensitive to begin with. I understand this is not systemically absorbed but what if it causes more GI issues? I am looking for hope as I am slowly losing it. I am a relatively young person wit…
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I need fucking help. I actually do not have exact IBS but do have some gut issues and I take various probiotics to experiment, including B.subtilis DE111 and many others, and I am posting here because this appears to be a forum where I can get some much needed help with people much more experienced than myself and because I do happen to be someone with chronic medical issues who is being doomed to hell by fucking bathroom use. I am an adult who lives with his parents. I am in this position due to a series of physical medical issues that make it impossible for me to hold down a job. I have tried. every day is full of searing pain. And I have been to the ER even when n…
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Hi i have never been with a girl that has ibs so i wanna try it, if any are here then reply to this thread
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Hi, I just found this website after returning home from yet another colonoscopy where I didn't clean out well enough. I was ready to throw in the towel with the whole stupid BS (no pun intended) because, as someone else said, there's no solution . . . I have IBS-C, not to mention a bunch of other chronic stuff. Well, turns out for starters, I didn't even understand the importance of taking Linzess on an empty stomach. I thought it was just another recommendation. With 10+ meds to take every day, I just added Linzess to my pill tray. So we got that straight. As for the rest, I'm thankful to read other similar stories. I just have trouble wrapping my mind aro…
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