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Welcome and Newly Diagnosed

This is the place to start with introductions for new members with motility problems.

You've arrived at a community for IBS Patients created by the Founder, Jeffrey Roberts, who also created the very first IBS website and community on the internet.

I began my work in IBS in 1987 when I was involved in a local support group for IBS sufferers and then launched my first IBS website in 1995.

Our community is a safe space to discuss gastrointestinal diseases, to offer one another support, and to share experiences and proven coping strategies. Members are encouraged to speak freely about problems, concerns, frustrations, and to contribute their helpful hints, information, encouragement, and support. We never expect anyone to volunteer any information they wish to keep private.

I hope knowing there are other patients just like you who have IBS, means you are not alone.

Jeffrey Roberts MSEd, BSc, Founder
IBS Patient Support Group

  1. ShamrockNY
    Started by ShamrockNY,

    Hi everyone. I’m new here. Just found this board while goggling for doctors for help. I have dealt with IBS in the past but what I’m experiencing now is just god awful. I have been to two gastro doctors. Had multiple tests, ct scan, Endo, colonscopy, ultrasounds and blood work. All cleared. I have been suffering for 5 months now every day all day. It started with pain in my upper right area under my ribs. I thought it was gallbladder related. It then turned into horrific gas and movement throughout my gut but mainly settling in the same upper right area. My stomach always feels hungry even if i eat. I lost over 10ths because it’s difficult to eat. Every day has bec…

    Mom of IBS teen
  2. ezhadders
    Started by ezhadders,

    I'm IBS-M. I've recently been 'diagnosed' with IBS, I say 'diagnosed' as it was more of multiple A&E visits with stomach cramps that had me in a wheelchair and an offhanded comment by a doctor to suggest it's IBS and that's the diagnosis they've stuck to. I'm on Buscopan for cramps, Omeprozle for acid, Laxido for constipation, Vitamins for hair loss and Kalms for the stress. I can't take antidepressants as they trigger the Gurgling and frog noises all day. Sorry, I refer to it as frog noise a lot as I literally sound like I'm rabbeting and my stomach moves like a frog when it happens - the puff out and everything! I'm still trying to figure out my triggers, Str…

    Jeffrey Roberts
  3. Ford
    Started by Ford,

    I am new to all of this and just joined on here. I'm not officially diagnosed but the little bit of research of my symptoms online lead me to believe this could be it. Been seeing a Dr for almost a year and had a number of different tests. A lot has been ruled out but IBS has not been ruled in. The mysterious symptom is a very slight sensation, not painful, but just know something is there located in the left flank of my back midway up the ribcage. Most always there is gas just after the feeling. I have both diarrhea and constip at times but not all the time. Constip more so but not by much. In addition, that strange sensation in my mid ba…

  4. Caleb
    Started by Caleb,

    Hello everyone, I have been dealing with ibs for 6+ years now and my symptoms have included bloating, gas, gastritis, constipation, diarrhea, chronic fatigue, abdominal pain, back pain, headaches and muscle spasms. I recently saw a doctor this past summer that specializes in eastern and western medicine combined. They were first people to help me find that I had giardia in my gut, through a GI Map. I did an antibiotic treatment along with a licorice root supplement. My symptoms became better after the treatment but I still had minor pains and issues. My doctor then put me on a treatment of probiotics and butyrate. This helped immensely and I thought I was comple…

    Jeffrey Roberts
  5. Sport of Kings Anne
    Started by Sport of Kings Anne,

    Hi all, glad and sad I found this community. I have been dealing with IBS for at least 20 years, and now have also been diagnosed with Tenesmus. I was so scared that I had some type of blockage- ended up in the ER Friday night. I am going thru a stressful time and I guess this is just some new fun to the mix. I have started Metamucil to make sure I have no issues- and it is working. I do and still having spasms- but Bentyl seems to be helping that a bit. I do also take Busperion as needed- will start again tonight. I had a Colonoscopy two months ago and it was fine. Any other helpful tips to try and get a hold of this “ flare”?

    Jeffrey Roberts
  6. Frenchprof
    Started by Frenchprof,

    Hello everyone, I'm a 64 yr old woman who was dx with IBS D probably about 30 years ago after a bout of diarrhea with blood in mucus. My gastroenterologist did a colonoscopy at the time and based his dx on a clean colonoscopy and my symptoms. I should add that I have a lot of anxiety issues also. Symptoms came and went over the decades, resolving themselves over about 1-2 weeks, sometimes with Lomotil, sometimes Imodium. About 24 yrs ago, after a bad case of food poisoning and right in the middle of dealing with my late daughter's brain cancer, I developed an anal fistula (OMG, what awful timing) which required a fistulotomy. About 9 years ago, I develope…

    Jeffrey Roberts
  7. rfedd
    Started by rfedd,

    Hi, Received my diagnosis for IBS-D about 30 days ago, after numerous doctors appointments, and several trips to the ER. All vitals were great, imaging was clear, Only problem was my severe abdominal pain. Could not eat normally without either the "D" or the "C" in some cases. First episode (severe) in May. MY GP could not identify. Sent me to gastro enterology and it took them about a week to figure it out. This is a really nasty disease. Makes you almost immobile. I have been through Stage 3 prostrate cancer, Stage 2 salivary gland cancer, diagnosed with AFIB, gall stones (gall bladder removed) and 2 heart attacks (stents). This beats them all. I am hoping to get some g…

    Jeffrey Roberts
  8. Jeffrey Roberts
    Started by Jeffrey Roberts,

    On this Thanksgiving, I want to take a moment to truly thank the members of our community who have helped make everyone else feel welcome in our group. I wish everyone a happy and healthy Thanksgiving. Jeff

    Jeffrey Roberts
  9. MichelleLee
    Started by MichelleLee,

    Hello! I am a 42 year old female who has had stomach issues since I was a little girl. I have had multiple tests done (several years ago) and ended up being told it was probably IBS. My symptoms seem to be escalating currently, and I am left wondering if it is IBS or if it could be celiac disease. Primarily, I am dealing with excessive gas, gas that often feels trapped inside my colon and/or bowel. I often feel like I have little "bombs" going off inside my stomach or intestinal tract. I get bloated and often have significant stomach pain. I have not been able to accurately identify which types of foods make this worse. Lately, I am also noticing what feels like mor…

  10. Sjs8
    Started by Sjs8,

    So glad I found this site. It took four months with many tests and procedures to finally get a diagnosis. During that time frame , I lost 20 pounds and confidence that I would survive this. I believe I am on track to manage my IBS.

    Jeffrey Roberts
  11. Bye
    Started by Bye,

    Hi…new to IBS since January 22 although I’ve had intolerances most of my life. I had what we used to call a “nervous breakdown” after I discontinued taking Prozac. I had terrible withdrawal symptoms (heart palpitations, insomnia, dizziness, mood swings). Then my anxiety peaked in JAN worse than I’d ever experienced and that month I had a 2-week attack of abdominal pain. Started talking to an online therapist for two months then had a month long IBS attack in April,saw gastroenterologist, had colonoscopy (normal), and continue with FODMAP with limited success. Looking for advice and positivity that this can be controlled. Thank you!

  12. Marilyn72
    Started by Marilyn72,

    Just diagnosed with IBS, feeling very confused and alone.

    Jeffrey Roberts
  13. IBS Distressed
    Started by IBS Distressed,

    After suffering with IBS for at least 12 years, it occurred to me that there might be a support group out there somewhere, and I was glad to find this site. I can't say what type of IBS I have. I would normally say that this is the result of constipation ("incomplete elimination"), but one gastroenterologist explained that people generally misunderstand the term "diarrhea", thinking that it refers to loose or liquid bowel movements. She said that the medical definition actually refers to the "volume" of those movements. Can anyone corroborate that definition? Basically my two symptoms are: 1: a large number of bowel movements (5-10) over a period of a few h…

    Jeffrey Roberts
  14. Hetchins_1946
    Started by Hetchins_1946,

    Hi all I was diagnosed with IBS after a lot of tests back in 2007. At the time I was under a lot of increasing pressure at work, and it's clear now that stress was the trigger for the IBS symptoms. I retired from work in 2012 with anxiety and depression. I've often had IBS-D symptoms since, but they have resolved within 18-24 hours and I've just got on with life. I've noticed that the main trigger now seems to be sudden hot weather. A couple of weeks ago I was volunteering in the open air on a very hot day with no shade - and I've had the worst IBS-D flare up ever, plus some new symptoms! I feel that I'm on the trailing edge of the flare up but am still very tired.…

    Jeffrey Roberts
  15. John Arnau
    Started by John Arnau,

    Jeffrey and Emma, my name is John Arnau and I am brand new to the site. I have had IBS-C for about ten years now (ten long years). Please see my other post on the IBS-C thread. I was on both Klonopin (anxiety) and Zoloft (anxiety and depression) for about eight years and they did not help me with the frequency or intensity of my IBS attacks, which normally last between 7-10 days and usually occurs about once a month. However, these medications did help to control my anxiety and depression. The thing that helped me more than anything is regularly taking Ex-Lax and colace during an attack. This lessened my pain during IBS attacks from 10/10 pain level to about a 5/10.…

    • 0 replies
    • 493 views
  16. Leïla molié

    Hello, Ive been diagnosed with ibs also i have a lot of others health issue im suffering from dince a long time that makes dealing with ibs too difficult and scary to me. First the fact I cant go out because of my social phobia severe anxiety and body dysmorphia makes it too hard to see doctors i can see doctor coming at my appart luckily my doctor is supposed to come on monday and she will make a letter so i can see a specialist a gastro doc. Problem of course is seeing the specialist would need to me to go out at the hospital but i will see how things will go one stress at a time i see my doc at my appart monday to start. The pain since one month, unusual because …

    Jeffrey Roberts
  17. Mabel Frances
    Started by Mabel Frances,

    Over the last year symptoms getting worse. Last two weeks severe constant pain. Cant do anything. Off sick from work. Never been this bad. Tried FODMAPS diet wise and Hypnosis and exercise. Anyone else had severe pain that long.? GP just doubled up anti spasmodic

    • 1 reply
    • 618 views
    Leïla molié
  18. Stephanie89
    Started by Stephanie89,

    Hi all, I started suffering about 5-6 hrs ago, went to my GP who referred me to Gastro but ended up waiting so long and my symptoms were just getting worse and worse so decided to go private. My consultant has been amazing, no cancer or obvious signs of IBD so he’s currently saying it’s just really severe IBS (I didn’t even get a day off the loo after my colonoscopy 😢 which I was looking forward to). Everything I eat seems to be a trigger, I’ve gone lactose free and even cut out tea and coffee 18 months ago but it’s just getting worse to the point I’m crying on the toilet some days whilst trying to rush back to work. I don’t have celiac disease, he tested samples so I’m r…

    Jeffrey Roberts
  19. Jinty
    Started by Jinty,

    I have just been diagnosed, looking for best UK author books for reference/recipes so food items are availble in UK, I am based north Scotland so exotic/unusual foods are limited....

    Jeffrey Roberts
  20. EmmaSegura
    Started by EmmaSegura,

    Hi everyone, My name is Emma. I am 44, originally from the UK but now living in Portugal. I was diagnosed with IBS a long time ago (my symptoms started when I was around 13) and over the years I have seen many specialists. I am now on first name terms with my gastro here in Portugal who has tested me for absolutely everything and found nothing (like many of us I suspect). My IBS seemed to get worse with the onset of the pandemic - stress maybe or age - and now I am suffering so badly. I am going to try peppermint oil and would appreciate any advice on which brands to take (have to be available in Europe) or any other treatments that might help as I really am at my wi…

    Jeffrey Roberts
  21. lumun
    Started by lumun,

    Hello, I have IBS-M and I'm just not sure what I should do next. The IBS has changed dramatically over my life time (I'm 56 and I was initially diagnosed at age 17). I used to be constipated, have terrible cramping and pain, then go to the bathroom and felt fine again. That changed to going to the bathroom several times before I felt okay. Then, the episodes became more frequent (several times a week) until I could no longer work and the pain and cramping became almost unbearable to the point of fainting each time. Now, on top of all that, after I have an episode, for days afterward, any time and everything I eat (dry toast, oatmeal, crackers, literally an…

    Jeffrey Roberts
  22. Lisajk
    Started by Lisajk,

    Just joined this group and hoping for information and support. Diagnosed 37 years ago with IBS-C. The past several years it has gotten worse and now it controls my life. Feeling hopeless about seeing any change and disappointed in doctors that have never really given me a lot of options for management. Maybe there aren't any. Going to try Low FODMAP. Has anyone had success with that? Also looking for information to help friends and family understand this crazy syndrome. Thank you.

    Jeffrey Roberts
  23. Silver Flamingo
    Started by Silver Flamingo,

    Hello everyone. I am new to the group , I have been suffering with pain on my LUQ( left upper quadrant around my rib cage for the last one year. Had been to gastro and dis all the tests- MRI, CT scan, Colonoscopy, endoscopy and all came back good. Dr finally concluded I have IBS , All prescription medication including TCA's never worked. The pain starts after I poop in the morning and feel nauseated and stays whole day , sometimes gets better late evening. Sometimes the pain is on the right side. I have no Constipation or Diarrhea. This is affecting my daily life and feel frustrated. I have tried probiotics, low FODMAP diet, Gluten free diet. Nothing seems to wor…

    Jeffrey Roberts
  24. HayleyR
    Started by HayleyR,

    Hello all, I'm new here and I'm really just looking for some support! I've had problems with my poop for a while now but honestly just ignored them as really they didn't bother me that much, but I recently I realised that it's not normal! My doctor has told me to take probiotics for now... I think I have a sensitivity to lactose which I cut down several month ago (because of bad heartburn which has got much better) but have allowed dairy to sneak back in my diet... but I'm not sure about gluten as well. Each morning I wake and have a fairly normal if soft poop but it floats, followed later... 30 mins or an hour... by a more or less liquid poop sometimes explosive. I don'…

    Jeffrey Roberts
  25. Eglin girl
    Started by Eglin girl,

    Hello.....it has been about a month since I've started have continuous diarrhea. I do mean continuous up to 20 times a day. Urgency is great and the loose stools smell horrible and float to the top (sorry to be so graphic). I've never had this issue! Stool tests for bacteria have all come back negative. If I take two Immodiums in the morning I do fine until 10-12 hours later when the next diarrhea episode ensues. I have an appointment with a gastroenterologist in August. I am losing weight and regardless of what I eat (crackers, yogurt) it goes right through me usually within an hour. After much research my diagnosis is IBS-D or EPI (Exocrine Pancreatic Insufficie…

    Jeffrey Roberts

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