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Chey: non-celiac responders to gluten is a subset group of patients Chey: Numerous RCT’s (randomized control trials) for low FODMAP most consistently for pain and bloating Chey: low FODMAP diet real live data is different than clinical trials as we don’t know long term elimination and reintroduction Chey: FODMAP Elimination is the beginning, not the end! Great message for all these doctors to hear. It’s a *process*, not just a list of low-FODMAP foods. See https://www.ibspatient.org/lowfodmap/ for more info. Chey: Can we utilize the microbiome to indicate who will do well on the low FODMAP diet for IBS? Chey: Fecal microbiome predicts IBS patients response to a low FODMAP diet Chey: Congenital Sucrase-isomaltese deficiency (CSID) is under diagnosed in IBS-D patients Chey: Supplementation (prebiotic) had same response as low FODMAP diet. Suggest that it might be beneficial in some patients eg: Glutamine for PI-IBS (post infectious IBS) Chey: Dietary manipulation is a critical part of the treatment strategy in patients with IBS. Food is complicated. Caterina Oneto: Several trials have shown the benefit of low #FODMAP diet in #IBS . Mechanism not entirely clear, but we do know that the low FODMAPs diet is associated with a) decreased total bacterial abundance and b) increased microbial diversity Premysl Bercik: Bacterial production of histamine may be an important factor in mechanism behind the benefit of a low FODMAP diet in reducing pain in IBS Shanti Eswaran: Reports lower response to low FODMAP diet in IBS patients with sucrase isomaltase gene defects. Something to consider in low FODMAP Diet non-responders.
Jeffrey Roberts posted a topic in Diet and FODMAP DietThe Low FODMAP Diet: Elimination is the Beginning NOT the End The team at Monash University in Australia, led by Professor Peter Gibson MD, developed the low FODMAP diet. In its strictest sense it is not so much a diet as it is a diagnostic tool for helping to determine whether foods in your diet are involved in contributing to your gastrointestinal symptoms. Some IBS sufferers have unfortunately been using the low FODMAP diet as a forever elimination diet whereas it was designed to be a three phase process. Taking on the three phase diet process by yourself is not recommended. An experienced FODMAP Dietitian is your best ally for using this diet as a diagnostic tool for symptoms. >> Read More
My IBS symptoms started in October 2014.I had constipation, burping and excruciating pain under my ribs.I lost 35 pounds (15.8kg) in weight because I basically stopped eating due to the pain. I was off work for 2 months and spent the best part of 8 months in my bedroom. It was May 2015 before I was diagnosed as having IBS. In June 2015 I discovered the FODMAP diet and started by reducing all FODMAP groups. The symptoms reduced 90% within days. In the next few months I discovered my trigger groups were O (inc. wheat, onion, garlic,sweetcorn,brocolli) and M (inc .apples, pears and anything containing glucose fructose syrup). Over the next year I found my tolerance to O and M foods gradually improved but I still had to limit foods that were very high in these FODMAPs. (wheat, onions and garlic in particular), Then I decided to introduce a potent probiotic that did well in independent clinical trials. Its called VSL3 and it is very expensive. To save cost I only took half the dose but mixed it in a relatively cheap probiotic yogurt drink called Actimel. I took the VSL3 first thing in the morning before eating. This is because stomach acid is low at this point which gives the probiotic bacteria the best chance of surviving and reaching the bowel. This seemed to speed up my recovery and I was been able to eat wheat, garlic, onion and foods containing glucose fructose syrup in surprisingly large amounts without any symptoms. There is no instant cure for IBS. I believe it is predominantly a problem of bacterial species mix in the bowel. Changing the species mix in the bowel does not happen overnight. Both the foods we eat and some probiotics can change the mix but there is no magic formula that fits everyone. For me the mix of the FODMAP diet and VSL3 seems to have brought my IBS to an end. The key to defeating IBS is understanding it. I learnt a lot about IBS from my experience so have shared it in a blog to help others who suffer this awful condition. You can view the blog here.