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  1. First off, im gonna be very transparent and to the point, some strong language. Hi, first of, im a guy, im 20 now, my IBS and stomach issues as a whole started when i was 16 going through a very stresfull period for a few months. At first, my GP diagnosed it as just mild acute gastritis and got me on some pills. The stomach issues just keept getting worse, after a year i went to a gastrologist, got a an endoscopy which showed quite severe gastritis with an ulcer. They took a sample which showed presence of H pylori bacteria which was treated with antibiotics. As my gastritis related symptoms improved (the burning and bloating sensation in my upper stomach), the lower stomach symptoms just got worse, i had sharp pain, bad flatulence, it was mostly gas related pain, bad constipation... And it was constant, i'd be in school and my stomach was killing me, i was sweating, looked pale as fuck, it was horrible. There was a period where i was pretty sure i han cancer or IBD, there was no way that IBS could cause so much pain... But yeah, it very much can. So i realised, not only was i dealing with chronic gastritis but also quite severe IBS at the same time, not fun So how did i go about improving it: 1. As much as it is repeated, yes,stress and anxiety are a HUGE cause of IBS and stomach issues as a whole, the gut brain conection is very much a real thing. Think about taking a test or getting your results back, something really important, you always get that feeling in your stomach, especially if you have IBS, which is just basically a sensative stomach. 2. Food. Make a fucking list of foods that mess you up, dont listen to the general bullshit advice everyone gives, its not the same for everyone, high fiber foods for me are death, Beans will literally make me have the worst gas pains ever, going vegan for my stomach would destroy me, i have no problem with meat or gluten, actually eating slow digesting food for me is better, so i balance it out, i eat more slow digesting food and add bit of fiber in there, eat an apple, some carrots... Just not beans, fuck that. 3. Which brings me to the constipation, not everyone has the same stomach function, some people shit 3 times a day, other's shit 3 times a week. I remember getting stressed about not shitting enough and buying lactolose... holy fuck was that a bad idea... That shit literally gave me the worst gas pains in existance. Dont mess with your digestive time, dont try to speed or slow it down with supplaments, leave it alone for a while, let it adjust on its own. Sometimes i shit every day, sometimes i dont shit for 3 days and then have a day where i do it 5 times... I have a some pills for emergencys but i havent used anything in well over 2 years now, just let it be, dont worry about it. 4. Probiotics for me are not good at all, again, get gas pains, horrible flatulence... Coming back to the whole, dont listen to the general BS, not everyone is the same, some people love theme, my stomach hates theme. 5. The amount of food you eat, for me i noticed then when it was at its worst, i was eating small amounts of food thinking it was gonna make it better, it didnt. The trick is to not eat too much but also not be hungry, a good balance will do it. To wrap things up, my stomach isnt perfect but it sure as hell isnt as bad as it used to be. Maybe once in a while, like every 2 months i get a period of like 3-4 days where my stomach is being really sensative and stuff, but nothing like before, i stick to my "diet" i really wouldnt even call it that, just dont eat things that mess me up. With time and doing the right things it does get better.
  2. Hello! I am a university student, just finished my final year of Journalism studies, which has been odd considering the current situation. I suffer from IBS-C, and have done so for a while now. I went gluten and wheat free over a year ago and now have cut out any flour products completely. Recently my IBS has gotten so bad, not so much constipation since that is just tempermental, but just severe persistent bloating that will not go away. I have been diagnosed with IBS at the docs, but has been difficult to get any form of treatment since coronavirus situation... I have done an intolerance and allergy test privately out of my own pocket, so I'm hopeful that the results will come back showing anything I can eliminate from my diet to hopefully reduce symptoms and get things under control. Currently, everyday is just suffering and mentally troubling. Just feel so self-concious about the way the bloating looks and how I feel inside. :-(
  3. I am looking for a quote to use in my presentation at the FDA as to what it is like for a patient to live with the burden of IBS-C (constipation). Would you please write a sentence about what your quality of life is like living with this? I'm only looking for a sentence although I know many of us could write a novel! I will not use any names or contact information. Thank you.
  4. Hi fellow sufferers. I googled IBS support group. I was looking for others who deal with symptoms I have. I don't have a formal diagnosis but I'm planning to see my Gastro doctor (who has done my colonoscopy and upper endoscopy in the past year.) He's very nice. I've messaged him often and he communicates well. SO I do plan to get some answers because I know gut issues can be a variety of things. I'm keeping a little pocket calendar with some notes on what happens each day to show him. I seem to go from constipated to then diarrhea and it's so unpredictable and frustrating. I will try a little Miralax when I'm constipated and then it starts to help.. then a couple days later I'll start to go and go 6 times in one morning! Then it becomes too soft and watery and I'm empty again.. then I don't go for 3 days. This happens a lot. I saw a nutritionist and have gone GF for 3 years. That seemed to totally help that AND acid reflux but now both are back. I am healthy weight and a lifetime WW member. I walk a mile+ daily. I am age 68 and very active.. do yoga once a week, ride my bike 4 miles 4xweek in summer... drink lots of water... grow a veg garden and eat healthy and I also like fruit. I try a probiotic daily.. sometimes a little Kefur and take Magnesium Aren't I doing all the right things? I consider myself really healthy and take pride in taking care of myself. I'm happily married and busy all the time. I sleep well. This is the only thing, other than a few orthopedic issues such as back surgery once that is my biggest health problem. I have great Blood pressure at 115 and never smoked. I only take Omeprazole 20 mg and a small dose of simvastin because I never could get my "good cholesterol" high enough. That's it for medications. Questions: Can you have IBS C AND D interchangeably? Does IBS also go hand in hand with acid reflux? Which is better.. Benefiber or Metamucil. I have used both and have both. I had my first diverticulitis last year day after my colposcopy.. they figured the test irritated the colon. Did not like the 10 days of antibiotics.. then it returned 3 weeks later and another round of antibiotics!!! SO that's my story and some of my questions. I like forums with others who share... but there's always the worry that people can sometimes share horror stories and make a person more scared. I DO like to learn from others! I really want to know what this is called for sure... IBS or something else! AND do those of you who know for sure you have IBS just have to experiment like I'm doing and "live with it?" Thanks for taking time to read this.
  5. What is the difference between IBS classifications? I see some people say they have different ones with letters after them, what does that mean? am very new at this so just learning, thanks
  6. We recently became aware of a delay that has occurred with the decision at the FDA (Food and Drug Administration) as to whether to re-approve Zelnorm (tegaserod) following the meeting of the FDA Gastrointestinal Drugs Advisory Committee to discuss the reintroduction of Zelnorm (tegaserod) for Irritable Bowel Syndrome with constipation (IBS-C) and our testimony on October 17, 2018. On November 21, 2018 a Citizen Petition was submitted from Hyman, Phelps & McNamara, P. C. to the FDA requesting that the FDA "refrain from approving any new drug application (NDA) supplement (5NDA) to allow Zelnorm (tegaserod maleate) (“Zelnorm” or “tegaserod”) to be marketed unless the sNDA contains substantial evidence of safety and effectiveness for the proposed use in the proposed population under current applicable standards.". The FDA acknowledged the citizen petition on November 26, 2018. We have read through the Citizen Petition and our impression is that it is asking for Zelnorm to be re-submitted as a new medication under a NDA (New Drug Application) because the patient group has now changed from women to women who do not have a risk for a cardiovascular event. We have also read that pharmaceuticals have used a Citizen Petition to hinder a medication to enter the marketplace by slowing down the FDA decision process. This tactic had become so severe that in October 2018 the FDA cracked down on the "loophole" by issuing draft guidance to stop the use of the Citizen Petition. Where does this leave Zelnorm? We fully support access to Zelnorm (tegaserod) for patents with IBS-C and intend to submit a comment to the Citizen Petition to inform the FDA that patients are still demanding access to this medication and accept the risks associated with it. If you are inclined to submit your own comment, please follow this link at Regulations Gov for docket#FDA-2018-P-4490, https://www.regulations.gov/docket?D=FDA-2018-P-4490
  7. I want to thank everyone again for their comments and support for my testimony at the FDA in Washington mid-October for two constipation medications namely Zelnorm and Prucalopride. The IBS Patient Support Group was the only patient voice at the meetings. While there was some excellent testimony by some doctors and medical associations, I was the only patient speaking about the patient perspective. My primary reason for going was not specifically to have drugs approved. Rather, it was for the FDA and industry reps to see that at the end of the day, a patient is looking for treatment options in order to live a better quality of life with IBS. The FDA advisory panel was not aware of how difficult it can be living with IBS. Your comments went a long way to inform and educate the panel. I would even go so far as to say that the patient voice moved the decision in a positive way. I believe that more treatment options help more people and encourage researchers and industry to keep working at solving the cause for IBS. This helps IBS patients all over the world. Thanks again. Jeff
  8. Seroquelled

    New to this group

    Hi All, I'm new to this group, having just left another one that scared the hell out of me. I do have mental health issues, which I'm sure contribute to my daily struggles with IBS-C, and I do have a story, but will let you know for now I suffer from debilitating anxiety, equally debilitating IBS-C, have very little medical support, am on Constella (or Linzess, as it's know in the US), don't use stimulate laxatives, and am wondering what your views of long-term use of Constella happen to be? It's not classified as a laxative, and has no stimulant properties, and I've been on it for two years as max dose. Can anyone provide their own experiences with Constella, along with their idea about its safety for long-term use, and perhaps offer any suggestions about how I may manage IBS-C, which I've had for years and has destroyed my life (along with many other things -- I'll provide a bio later, but since the other group was not very supportive and kept telling me Constella/Linzess is a laxative, will fail, and I'd better be prepared to suffer ever more unless I did this, this, and that, I'm tentative about share too much. I will tell you' I'm 43, posted this in the IBS-C forum but didn't realize there was an introduction process, and I apologize. I am a supportive person, very sensitive, and incredibly empathetic. Any replies that are kind and not combative or dismissive would be incredible. Thank you, Seroquelled
  9. Hi All, I'm new to this group, having just left another one that scared the hell out of me. I do have mental health issues, which I'm sure contribute to my daily struggles with IBS-C, and I do have a story, but will let you know for now I suffer from debilitating anxiety, equally debilitating IBS-C, have very little medical support, am on Constella (or Linzess, as it's know in the US), don't use stimulate laxatives, and am wondering what your views of long-term use of Constella happen to be? It's not classified as a laxative, and has no stimulant properties, and I've been on it for two years as max dose. Can anyone provide their own experiences with Constella, along with their idea about its safety for long-term use, and perhaps offer any suggestions about how I may manage IBS-C, which I've had for years and has destroyed my life (along with many other things -- I'll provide a bio later, but since the other group was not very supportive and kept telling me Constella/Linzess is a laxative, will fail, and I'd better be prepared to suffer ever more unless I did this, this, and that, I'm tentative about share too much. I am a supportive person, very sensitive, and incredibly empathetic. Any replies that are kind and not combative or dismissive would be incredible. Thank you, Seroquelled
  10. I just received an email from Jeffrey D. Roberts inviting me to this forum. I figured I'd take a second and set up an account to let everyone know that I'm so happy to report that my IBS (mostly diarrhea but sometimes alternating) has disappeared since I started taking this product called IBS Formula. After a friend's recommendation, I bought a bottle on Amazon over the summer. After just a few days of using the product, I was diarrhea free. It's around $26 on Amazon but now I get it autoshipped every month from ibsformula.com and it's $22/month. If you're still suffering it may be worth a try.
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