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  1. New report reveals that more than one-third of IBS Patients surveyed state it has been more challenging to manage their symptoms during the COVID-19 pandemic. Salix released a report of survey results that offers perspectives from U.S. adults living with irritable bowel syndrome (IBS) during the COVID-19 pandemic. Entitled, Patient Perspectives: Living with IBS in a Pandemic, the report provides insights about the symptoms and behaviors of IBS patients over the past year (March 2020 – March 2021). Most notably, more than one-third (37%) of those surveyed acknowledge that the COVID-19 pandemic has made it more challenging to manage their IBS symptoms. The report, which was developed based on a survey conducted by The Fairleigh Dickinson University Poll, also finds concerns about post-pandemic life and insights about the way patients are communicating with their health care providers. “It’s been just over a year since the COVID-19 pandemic upended lives across the nation. Salix is committed to helping patients with GI conditions, and we believe it is important to gain an understanding of how the COVID-19 pandemic may impact people living with IBS, a common gastrointestinal disorder that is estimated to affect more than 12 million Americans1,” said Robert Spurr, president, Salix Pharmaceuticals. “We believe these new insights may foster important dialogue between health care providers and their patients.” Key findings from the report include: The pandemic is impacting the wellbeing of IBS patients with 49% reporting that their mental health has worsened. Of the respondents, 51% report worse physical activity and 34% state worse eating habits. Many respondents report deteriorating IBS symptoms. According to the survey, 33% report worsened diarrhea, 31% report worsened constipation, 39% report worsened abdominal pain or discomfort, and 42% report worsened bloating. Fewer than 15% of patients surveyed living with these symptoms report experiencing an improvement over the past year. 35% of respondents have not discussed their IBS symptoms with a health care provider at all since the COVID-19 pandemic began. Respondents express concerns about post-pandemic life, including lack of access to restrooms (55%) and being able to attend social gatherings (48%). >> To view the complete findings from the Patient Perspectives: Living with IBS in a Pandemic report, visit here. References 1. Palsson OS, Whitehead W, Törnblom H, Sperber AD, Simren M. Prevalence of Rome IV Functional Bowel Disorders Among Adults in the United States, Canada, and the United Kingdom. Gastroenterology. 2020 Apr;158(5):1262-1273.e3. doi: 10.1053/j.gastro.2019.12.021. Epub 2020 Jan 7. PMID: 31917991.
  2. Hello! I am new to this group but have been stalking for awhile. 😃 I appreciate all the information everyone shares and hope I can help others with anything I have found to be beneficial in my journey with IBS. I was diagnosed with IBS-D nearly 10 years ago. Over the years, I have tried many things including food sensitivity testing, extra fiber, probiotics, Imodium, IBGard, and cutting out most gluten and dairy. Everything helped a little and I have gotten to the point where I rarely have any symptoms EXCEPT when I leave the house. Over the last 2 years, anxiety seems to be the biggest trigger that causes my IBS-D symptoms. I tried a low dose of amitriptyline for about a month but had some side effects I didn’t like (dry eyes, more agitated). I admit that I may not have given it enough time to see if it would help. Now I am using Ashwagandha and am about 2 weeks into a 6 week hypnotherapy program with the Nerva app. I don’t know if hypnotherapy will work but it has become a 20 minute treat each day because it is suuuuper relaxing! Being stuck inside because of the pandemic has not helped but I am also trying to make myself get out more. Like go to the store first thing in the morning to prove that I can do it without any issues, etc. But I need to get to the point where I can meet a friend for lunch without anxiety being a big part of the experience. Have others experienced what I am describing – where anxiety seems to be the trigger – and what has helped you overcome the anxiety? Thank you!
  3. To whom it may concern, I am posting on here once more to retain anonimity and my dignity. My anxieties are quite high ahead of my Doctor's appointment and the predominent reason for this is that I feel I may be suffering from slight incontinence: from very very mild staining of underwear to full loss of bowel control. Do you think this is a cause for concern as I cannot find much information relating to IBS-D and incontinence on the internet. Also, being a 24 year old male, I am very self-concious about this issue and I am concerned that the doctor will suggest wearing incontinence underwear. Has anyone been through this and can alleviate my worries. Best wishes, MadeUp.
  4. Hi fellow sufferers. I googled IBS support group. I was looking for others who deal with symptoms I have. I don't have a formal diagnosis but I'm planning to see my Gastro doctor (who has done my colonoscopy and upper endoscopy in the past year.) He's very nice. I've messaged him often and he communicates well. SO I do plan to get some answers because I know gut issues can be a variety of things. I'm keeping a little pocket calendar with some notes on what happens each day to show him. I seem to go from constipated to then diarrhea and it's so unpredictable and frustrating. I will try a little Miralax when I'm constipated and then it starts to help.. then a couple days later I'll start to go and go 6 times in one morning! Then it becomes too soft and watery and I'm empty again.. then I don't go for 3 days. This happens a lot. I saw a nutritionist and have gone GF for 3 years. That seemed to totally help that AND acid reflux but now both are back. I am healthy weight and a lifetime WW member. I walk a mile+ daily. I am age 68 and very active.. do yoga once a week, ride my bike 4 miles 4xweek in summer... drink lots of water... grow a veg garden and eat healthy and I also like fruit. I try a probiotic daily.. sometimes a little Kefur and take Magnesium Aren't I doing all the right things? I consider myself really healthy and take pride in taking care of myself. I'm happily married and busy all the time. I sleep well. This is the only thing, other than a few orthopedic issues such as back surgery once that is my biggest health problem. I have great Blood pressure at 115 and never smoked. I only take Omeprazole 20 mg and a small dose of simvastin because I never could get my "good cholesterol" high enough. That's it for medications. Questions: Can you have IBS C AND D interchangeably? Does IBS also go hand in hand with acid reflux? Which is better.. Benefiber or Metamucil. I have used both and have both. I had my first diverticulitis last year day after my colposcopy.. they figured the test irritated the colon. Did not like the 10 days of antibiotics.. then it returned 3 weeks later and another round of antibiotics!!! SO that's my story and some of my questions. I like forums with others who share... but there's always the worry that people can sometimes share horror stories and make a person more scared. I DO like to learn from others! I really want to know what this is called for sure... IBS or something else! AND do those of you who know for sure you have IBS just have to experiment like I'm doing and "live with it?" Thanks for taking time to read this.
  5. I was diagnosed with IBS with D. My dr. Told me not to take magnesium. He told me to take 1 tsp of Metamucil and increase to 1tbsp if no results. He gave me a sheet of paper with the FODMAP diet to follow. I found the Monash university app on the internet which helps me see if items are good for me or not. Monash university is in Australia and is one of the foremost leading research centers in IBS. My symptoms were so debilitating that I could barely get out of bed. I felt some relief immediately following this diet. My distended belly went down and I feel I have some hope at getting better. I have totally illuminated foods that are bad on the FODMAP diet. Now I evaluate all foods before I put them in my mouth. I consider them like poison to my body. I will continue on my road to health and wish you the best and hope this might help. Nancy
  6. What is the difference between IBS classifications? I see some people say they have different ones with letters after them, what does that mean? am very new at this so just learning, thanks
  7. I'm a long time sufferer of IBS-D. I have been keeping close tabs on the newest medication to be approved by the FDA for IBS-D, called Viberzi (eluxadoline), and my doctor just prescribed the 100mg tablets for me, twice daily. I was disappointed that the pharmacist was so unfamiliar with the new medication that they failed to mention that you should take Viberzi with meals and that you need to be careful about the amount of alcohol you consume with it. I asked them to look for drug interactions and they correctly found that I may have a problem with Crestor (a statin) while on Viberzi. They asked me to speak with my family doctor about that. I will post my experience as I start to take it. I decided to start with dinner tonight and with only 50mg - half the usual dosage. Why half the dosage? I’m super sensitive to new medications and I was kind of expecting the worst, so I decided to only go with half the dosage so that the side effects would be minimized. Not scientific in the least and this wasn’t recommended by my doctor. Within 45 mins I started to feel a little light headed and dopey. That lasted about 30 mins and then I felt as usual. From then on I haven’t noticed any side effects other than being a touch nauseated.
  8. I haven't checked in here in a while but you all aren't far from my thoughts. I had a terrible time with IBS-D and an idiot doctor so I was on my own when I found this support group. I got a lot of help from quercetin and L-glutamine along with time and the typical things we have all tried. I'm writing today to mention 2 more supplements I have found that are helping me A LOT. They are Essiac Tea ( https://store.renecaissetea.com/products/blue-moon-herbs-essiac) and Wobenzym digestive enzymes. The Essiac i learned about because I am now giving it to my dog to fight a tumor she has. Then I read that it is also good for sufferers of IBS. I really think it has enabled me to enjoy some of the healthy foods that were a trigger for a while. The digestive enzymes are for joint health but if you read further they help systemically in a multitude of ways and, again, I believe they are helping me over potential episodes. I initially got IBS from too many scripts for antibiotics.. now my worst trigger is stress because Essiac tea and wobenzym have helped me over come the others. best of luck to you all.
  9. I have ibs-d for a long period.now my doctor prescribed me ibset tablets(Ramosetron) .Has anyone used it before,and what is the result?
  10. The American College of Gastroenterology (ACG) annual meeting reported some observations from patients who were treated with Fecal Matter Transplantation (FMT) for an overgrowth of Clostridium Difficile (C Diff). C Diff is a very serious bowel infection that is difficult to resolve. It is usually caused by antibiotics. FMT has a greater than 90% cure rate for C Diff. However, two observations were made about patients who recovered from C Diff after FMT: 1) Postinfectious-IBS developed in 25% of those that received FMT for their C Diff. 2) Crohn's disease or Ulcerative Colitis patients were likely to have a flaring episode of their disease from the FMT treatment. It appears FMT has some risks and is not a completely benign treatment. FMT has been in clinical trials for the treatment of IBS for the last several years.
  11. I suffer from IBS-C..I've tried all kinds of diets including eating just fruits and veggies..I've even JUST gone weeks ONLY having smoothies...ie..blending ALL my foods...fruits..veggies..meats with rice and beans turned to purees..herbal teas but still have trouble going on a regular basis...still experience abdominal pain and bloating and have gone for up to 5 days without a bowel movement...I'm on the websites constantly reading and trying new things but hasn't helped..does anyone have any miracle cures?
  12. Statins have been shown to affect the gut microbiome. I take a low dose statin for my kidney disease. A possible side affect is diarrhea. However, I am lucky and do not get that. I reversed my IBS-D in April, 2015 and am still doing fine. We perturb our gut microbiome in many ways. Here is some research on statins. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5550934/ btw Jeffery, what do you think of the human microbiome ?
  13. I would really like to hear from anyone who is taking or has tried Viberzi for IBS-D. What were your results?
  14. Hi Jeffrey, I've read that statins can affect the gut microbiome, so this is worth considering. I have to take lovastatin for my kidney disease. But, I try to take the least amount possible, while achieving acceptable test results. We're only just beginning to understand that many products, medications, etc. affect the microbiome. How can we expect the best results to improve our microbiomes, if we still continue to perturb them with additives in our food, or other products ? Have you ever considered treatment at the Centre for Digestive Diseases in Australia ? I've read in "10% Human" by Alanna Collen that Dr. Borody is reversing IBS-D with an 80% success rate. So, have you considered this option ? It seems that he is more successful than others and may have a better technique. Lately, I've been experimenting with periods of fasting and then consumption of a variety of fresh fruits and fresh vegetables, in the hopes of reducing my need for sleep. I still haven't decided if it is helping. The reasons for this are; 1. We know that the microbiome responds rapidly to changes in our diet. 2. We know that we can get new bacteria from our food. 3. Bacteria have short life spans. So, the reasoning is; to starve out the existing population and hopefully introduce new species and promote the growth of our beneficial species. If one can tolerate them, prebiotic foods should definitely be considered and included in this approach, which I am also incorporating. I don't expect immediate results and am hoping that over time with this approach that I can improve my microbiome population and improve my need for sleep. Time will tell.
  15. I just received an email from Jeffrey D. Roberts inviting me to this forum. I figured I'd take a second and set up an account to let everyone know that I'm so happy to report that my IBS (mostly diarrhea but sometimes alternating) has disappeared since I started taking this product called IBS Formula. After a friend's recommendation, I bought a bottle on Amazon over the summer. After just a few days of using the product, I was diarrhea free. It's around $26 on Amazon but now I get it autoshipped every month from ibsformula.com and it's $22/month. If you're still suffering it may be worth a try.
  16. A Phase 4 Multicenter, Multinational, Prospective, Randomized, Placebo-Controlled, Double-Blinded Parallel Group Study to Assess Efficacy of Eluxadoline in the Treatment of Irritable Bowel Syndrome with Diarrhea (IBS-D) in Patients who Report Inadequate Control of IBS-D Symptoms with Prior Loperamide Use (RELIEF). Location: Beavercreek, Ohio Gender: Both Female and Male Age: 18 to 80 years Study Duration: 18 Weeks Complete info here.
  17. At Digestive Disease Week (DDW) in Chicago, I met with the new pharmaceutical (Sebela Pharmaceuticals) that will be marketing Motofen. Motofen is primarily used as an anti-diarrheal medication and has been on/off the market since 1978. Motofen contains difenoxin and is considered a Schedule IV medication which means it is unlikely to be habit forming; however, it needs to be managed very closely. Atropine is added to help the drug not become habit forming. The drug was recently acquired by Sebela and they are in the imminent process of marketing it. For some, this medication will work similar to Lomotil. You can read more about Motofen on its website, http://www.motofen.com
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