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Excited that World IBS Day is just 60 days away on April 19th! Last year kicked off Patient awareness to show respect for Healthcare providers, Researchers & Industry. Let's do it again this year! Please share! https://www.worldibsday.org
In 1997 IFFGD in the US and in 2003, the founder of IBS Patient along with the GI Society in Canada, designated April as #IBSAwarenessMonth. Join IBS Patient as we continue to blog about #IBS throughout the month to continue to raise awareness for patients. https://www.ibspatient.org/ibs-awareness-month
Listening to IBS patients in the 21st Century. Offerings from an on-line Self Help and Support Group (IBSgroup.org) A. Ouyang (1), N. Inverso (1) , S-M Chow (2), A Kumar (3), B Zhong (4) 1.Department of Gastroenterology and Hepatology, College of Medicine and Penn State Health, Penn State University, Hershey PA 2.Department of Human Development and Family Studies, College of Health and Human Development, Penn State University, University Park, PA 3.Department of Supply Chain and Information Systems, College of Business, Penn State University, University Park, PA 4.Department of Journalism, College of Communications, Penn State University, University Park, PA Introduction: Social media is a source of information about health matters for a growing number of patients Understanding and potentially interacting via social media will be important to ensure that patients are receiving timely and scientifically sound information Social media interactions may offer insights into disease processes that may not be evident with single patient-physician interactions. Summary: Publications both precede and follow postings suggesting that the source of information to patients is multivariant and not solely determined by timing of biomedical research. Forum users’ interest in diet has increased substantially in the past 4 years but this increase in interest is not reflected in the publication trends, other than FODMAP. Patient posts suggest more interest in treatments than in understanding the cause of IBS while publications are more focused on pathophysiology Publications tend to peak and decline over a time period (possibly driven by funding trends) Except for serotonin, the number of posts for diet and treatment keywords persist or increase despite a drop off in publications Exchange of information on public forum may follow a power law: the postings appeared to be dominated by a few individuals Acknowledgements: Jeffrey Roberts, Founder of IBSgroup.org for helpful discussions Manoj Velumani and Fan Yang for data analysis Funding for this study was provided by NSF grant SES-1357666 and NIH grant R01GM105004, Penn State Quantitative Social Sciences Initiative and UL TR000127 from the National Center for Advancing Translational Sciences. Link to full size image.