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I am looking for a quote to use in my presentation at the FDA as to what it is like for a patient to live with the burden of IBS-C (constipation). Would you please write a sentence about what your quality of life is like living with this? I'm only looking for a sentence although I know many of us could write a novel! I will not use any names or contact information. Thank you.
Jeffrey Roberts posted a topic in General DiscussionI followed the Crohn's and Colitis Congress #CCCongress over the last several days. It's an annual medically oriented meeting with doctors, researchers, industry and patient advocates focused on Inflammatory Bowel Disease (IBD). While IBD is medically different than IBS, many IBD patients have IBS-like symptoms between flares. Many of the treatment options that IBS patients use are just as relevant to an IBD patient. Many dietary modifications, therapy and often feelings of despair are also similar. The one thing not similar is an understanding that suffering from IBS has just a high impact as IBD on someone's quality of life. I'm working pretty hard to highlight the QOL issues of an IBS sufferer. Since I have both IBS and Crohn's disease, I have a perspective on both. It's sometimes a real challenge to find a doctor that will take IBS as seriously as IBD. I can tell you that they are out there. Find a new doctor, if you can, if your doctor isn't sympathetic to your QOL issues. There is no reason that you have to suffer in silence on your own.