IBSnoMore Posted November 13, 2017 Report Share Posted November 13, 2017 Part 1 Hello all, Your stories sound too familiar as I have suffered with this condition for 3 years . However ,I have been symptom free since Jan. '13 and am ever so thankful. My life was miserable, travel, friends, family all bore the consequences of this in one way or another. It is my hope that what this information will improve your quality of life. I believe this was caused by over use of antibiotics due to two case of Lymes disease , two bouts of Giardia , some dental work and a bad burn , all within a period of about 2-3 years. The constant pain and rumbling began shortly after and escalated to endless D , bloating, loss of appetite, severe abdominal pain and horrible smelling gas . After tests for everything , (H. Pylori , Parasites , Hep C , Pyroluria , C Diff , 2 MRI's , ultrasound etc ) , all came back negative , I began to lose hope . That is when I began talking about it with friends . This is not an easy subject to broach but , with time one can learn a dialogue that is more comfortable to others . Two things happened when I did this . First I learned that I was not alone . In fact, almost every time the subject came up, someone in the group had or knew someone with a similar condition . Secondly, people gave me ideas of what to try . The first suggestion came from my Yoga teacher when she suggested I drink Aloe Juice ( Aloe Life, Aloe Gold to be specific ) . I am certain that she was as eager to clear this up as I was - Hah ! ( The 'Plow' was notorious for well , you know ) . I bought some that day and began sipping away( 1-3 onces/day ) . By that evening I noticed a reduction in abdominal pain and by the next day it was nearly gone . Aloe juice will never win any culinary awards , so I would mix it with coconut juice ( the thick creamy kind, not the water ) . I should mention too that I am gluten intolerant and had eliminated it from my diet previous to the onset of these symptoms . I also restrict dairy to Goat milk and unpasteurized Cows milk . It is important that you rule out any food allergies as soon as possible. The pain was gone but the constant D , bloating , loss of appetite were not . Then I began taking probiotics in many forms . VSL#3 , S. Boulardi were very helpful but did not solve the problem . After spending quite a bit of time on the internet researching probiotics, I began brewing Kombucha, water kefir and making saurkraut . The results were immediate . The gas and bloating diminished and my appetite began to return . Life was steadily improving but I still had to deal with constant D. The bouts were less severe and didn't keep me up all night . Then one morning, I drank a cup of coffee on an empty stomach and it just erupted into a cacaphony of rumbling followed by a rapid trip to the bathroom and explosive results . That was it for coffee . On Dec. 10 ,2012 I drank my second to last cup of it ( I tested the theory a month later and had the same result ). My health has improved steadily and by Jan. my GI tract was actually forming stools . It has now been about seven months ( four years actually ) and I can say that my appetite has returned , GI tract functioning correctly , energy level are up and my social life has improved. Travel is no longer anxiety producing ( I formerly carried TP and spare clothes in the car) and I have returned to exercising as before . My diet remains Gluten and dairy free ( the exception being RAW cows milk and an occational lobster roll ) . I also eat Yogurt made from raw milk ( It is heated during the process, so it may be pasteurized to some extent ). Kombucha ( GT dave's,Reeds ) , Water Kefir and real fermented saurkraut ( Bubbies) are all available at health food stores if you lack the time to make it . Coconut water kefir is excellent as is coconut oil ( NOT palm oil ) . The coconut oil is said to repair damage to the intestine , contains no cholesterol , does not produce free radicals when heated (cancerous) and tastes delicious . It is loaded with medium chain fatty acids and has a low glycemic index . It would be naive to think all cases are the same and that everyone with this syndrome will react to these changes similarly . I am relating my experiences with the hope that you will begin to explore the working of your GI tract and how it responds to various foods and stress . Also, I want to give you and others who may read this a valuable tool . Hope . Without it you stand little chance of recovery. Be patient, experiment , keep a food log , read about it , use your intuition ( gut feeling ? ) , talk to people and most importantly , don't let ANYONE tell you this is incurable . Good luck . PS. Most Alopathic doctors are clueless about this syndrome. Restoring gut flora and eliminating offending foods is the solution, not drugs. Hope this helps.Posted 29 August 2013 - 07:41 AM Part 2 After rereading my post, there are a few things I would like to elaborate on . It wasn't clear that I continue to drink Aloe Juice . The relief came quickly but returned when I stopped drinking it. The first time I stopped was when my Dr. asked that I stop during testing . I did and those gnawing hunger like pains came back. Once I had the OK to start Aloe again, the pains subsided . The second time , I didn't actually stop drinking it , but rather switched to another brand , Georges. It looks like water, tastes like water and works like water , which is to say, it doesn't . The pain returned and I went back to Aloe Life which worked once again . The third time was on a kayak trip that I forgot to bring some with me . The pain returned but was relieved when the trip was over and I was able to buy some juice . That won't happen again. Aloe juice comes in several forms , juice , gel ,entire leaf or just the inside filet . In it's natural state , the inside filet is a gel , however after 48 hrs separated from the leaf, it becomes liquid . Therefore , all 'gel' products have added thickeners to make them appear more authentic . Not only is the deceptive but it is absolutely disgusting to drink ! Don't waste your money . I have tried many brands of Aloe and made my recommendations based on experience . I have absolutely NO ties to that company or stand to gain in any way whatsoever by advocating their products. Find one that works for you . I still drink aloe juice but not the Medicinal strength Aloe Life . There is a company called Alo (with a hyphen over the 'O' ) that is appearing in health store and even in some convenience stores that tastes great , really . Probiotics . My strategy here was to get as diverse a population as possible. The are hundreds (maybe thousands) of species in a healthy gut . I used the RAW types that had the most species. Additionally , the Kombucha ,Water Kefir and Sauerkraut draw bacteria and yeast from the environment thus , I believe, increasing diversity . Raw milk with it's live bacteria and enzymes added to this mix. Making Kombucha can be a bit daunting, I would advise you to start with water kefir. It is far easier to make and takes way less time (4 days ). You can flavor it like soda pop and kids will be begging for it. Not so with Kombucha, it's kind of an aquired 'adult' taste . Yes, there is a small amount of alcohol in it but not enough to become impaired . I also neglected to mention that the coconut oil must be the unrefined version . The refined lacks flavor and ,I'm sure , other healing factors . My diet consists of protein,salad and some vegs. Beans, rice, potatoes are very low on the menu . Though I never implemented it , the FODMAPS diet seems to address this well and many of you have experience success with it . Another area that needs to be addressed is nutrition . After spending so much time on the Throne (wink) , one can expect to be dehydrated and malnourished . Food transits your system so quickly that there is little chance to absorb nutrient . And all that water lost . After a bout of D lasting several days , I ask , where did all that water come from ? I know I didn't drink that much ! I supplement with liquid vitamins ( Buried Treasure 55 plus) for better absorbtion. Transdermal (Magnesium Oil) is good too as it bypasses the GI tract . In addition I make bone broth in the tradition of the Weston Price Foundation . There is a lot of great health info there . I know how much you all are suffering and it breaks my heart to read that there are people wanting to end their lives over this . Please don't ever give up hope . There is a solution out there , but it will probably be up to you to find it . Having supportive people in your life is invaluable . Lacking that , using this forum and others is the next best thing . Some Dr's and family members will say 'it's all in your head ' which is frustrating and aggravating but you may want to read about the GAPS diet . Gut and Psychology syndrome . For some of us, it may not just be the foods we are eating, but our thoughts and moods may be contributing as well. If anyone would like help with making Water Kefir , Kombucha or Sauerkraut , please ask. If I could help just one person regain their health , it would be worth any effort on my part. Please don't give up . Keep an open mind and know you are not alone . Don't be ashamed of this , it's not your fault that you have this awful, debilitating condition . Talking about with others is not easy or pleasant but it can be helpful . Develop a rapport that takes the 'Ick ' out of the conversation . Let people use their imagination a little bit, you don't have to be too graphic. Hang in there , be patient, stay focused, and know there is a solution out there and people willing to help you find it . 3 1 Quote Link to comment Share on other sites More sharing options...
steve Posted November 15, 2017 Report Share Posted November 15, 2017 Did you ever try Lily of the desert Aloe juice? Quote Link to comment Share on other sites More sharing options...
IBSnoMore Posted November 15, 2017 Author Report Share Posted November 15, 2017 Yes I have , excellent product . The only ones I don't recommend are any 'gel' product and Georges . Quote Link to comment Share on other sites More sharing options...
steve Posted November 15, 2017 Report Share Posted November 15, 2017 Thank you Quote Link to comment Share on other sites More sharing options...
IBSnoMore Posted November 16, 2017 Author Report Share Posted November 16, 2017 In fact , the aloe juice in my refrigerator is Lily of the Desert Stomach formula . Very good product . Quote Link to comment Share on other sites More sharing options...
sherryg Posted November 17, 2017 Report Share Posted November 17, 2017 Thank you so very much for the advice. I will be trying them. Quote Link to comment Share on other sites More sharing options...
IBSmom Posted November 22, 2017 Report Share Posted November 22, 2017 I started making and drinking raw milk kefir in June. My IBS has improved so much that it is practically none existent. I feel like I have had a gut transplant. I also drink bone broth. Traditional Medicinal Ginger Aid tea is also helpful to me at times. My kefir grains flourish, do I have been giving them to others who suffer with IBS and other health issues. Others are being helped, too. My energy level is so much higher. I am living again. My IBS doesn't "own" me anymore. I have had trouble when I attempted to reintroduce gluten and when I have reduced to just 1 pint of kefir. At this point I still seem to need 2-3 pints, but that isn't a problem for me at all. Quote Link to comment Share on other sites More sharing options...
IBSnoMore Posted November 23, 2017 Author Report Share Posted November 23, 2017 I'm so glad to hear of your success with with making and drinking Kefir , probiotics are truly the key to good health . I love how the grains multiply so that you can share them with others . Bread is a tough one as there are other things in wheat flour besides gluten like Glyphosate ( roundup ) , lectins and gliadins (undigestable proteins ) that can affect your gut health . What I have had success with is sourdough bread . My theory is that because the sourdough is a live culture , there can be no Glyphosate and the lectins are predigested by the lacto fermentation process . I eat it almost every day with no problems . Good luck and keep making those Tibbis . Quote Link to comment Share on other sites More sharing options...
IBSmom Posted November 23, 2017 Report Share Posted November 23, 2017 I finally tried sourdough bread for the first time this week for the same reasons you mentioned. It is also organic. I had some inflammation after, so I have decided to avoid it. I am not sure that the inflammation wasn't caused by something else. I had eaten other foods with lectins at the same time, but ones that usually don't bother me. I didn't like the sourdough enough to try again. I have been gluten free for over 10 years and have adapted. I like the foods I eat and rarely miss the ones I can't. It is only burdensome when taking my own food is inconvenient, but I am thankful that my situation is not worse. Quote Link to comment Share on other sites More sharing options...
scienceguy Posted January 4, 2019 Report Share Posted January 4, 2019 Great story and suggestions. Thanks for sharing it. Quote Link to comment Share on other sites More sharing options...
sammyherkal Posted January 17, 2019 Report Share Posted January 17, 2019 I've read that Aloe juice can make IBS symptoms to get worse and heightens your chances of miscarriage - did it make a huge difference to you in regards to pain? I've tried it so many years ago and stopped because it made my IBS-D (diarrhea) worse. Quote Link to comment Share on other sites More sharing options...
IBSnoMore Posted January 17, 2019 Author Report Share Posted January 17, 2019 Drinking aloe juice is what turned the corner in managing the pain . I don't know about miscarriage possibilities when using aloe juice , consult a health care professional. Quote Link to comment Share on other sites More sharing options...
wantmyoldgutsback Posted October 13, 2019 Report Share Posted October 13, 2019 Hello. question on probiotics, if anyone is still on this thread... I keep trying to start probiotics. However, right away I have issues. The probiotic themselves give me bloating, increased abdominal pain, and D. I am normally constipated type. however, when I introduce any probiotic (which usually is a fermented food like saurkraut, yogurt, etc.) I right away get these symptoms. That leads me to discontinue the probiotic course of action. I read a lot of reports about how people cured their IBS with probiotics. But I hear no mention of this symptom, or stage. Does anyone else get this? Is it just me, and something I should push through by keeping the probiotic / fermented foods coming? I tried for 3 weeks to just keep pushing forward on this course of action, and it was miserable, and then stopped. My theory is I need to do a bone broth diet (into GAPS) to kill off whatever is down there, before introducing and establishing new probiotic / bacteria. THANKS! Quote Link to comment Share on other sites More sharing options...
IBSnoMore Posted October 14, 2019 Author Report Share Posted October 14, 2019 Sorry that you are having negative results with probiotics , it seems to me that your instincts are accurate in assuming there must be an underlying cause that needs to be corrected . Aloe juice ( Aloe Life , Aloe Gold ) really helped me early on , have you tried that ? Quote Link to comment Share on other sites More sharing options...
Parneet Posted December 8, 2019 Report Share Posted December 8, 2019 Hi! would it be possible to link the kefir and aloe juice you used? Quote Link to comment Share on other sites More sharing options...
AshE Posted January 3, 2020 Report Share Posted January 3, 2020 Just wanted to thank you for your post. I had been having chronic stomach pain for months and was starting to go crazy. Did so many diet changes and nothing helped my constant stomach pain until I found your post and tried the aloe vera juice. I felt 75% better by the next day and now just a week in and completely pain free. Words can not express my gratitude!! Thank you so much!!! 1 Quote Link to comment Share on other sites More sharing options...
Jeminah Posted January 15, 2020 Report Share Posted January 15, 2020 Thanks so much for your tips and pointers. I have IBS -d . I also have spurts of uncontrollable gas, abdominal pain mostly during menstruation, and bloating. I have a sensitivity to gluten, diary , and soy. My routine currently is taking probiotics daily ( when i remember) and eliminate diary, gluten, and soy. Gluten free items still bother me for some reason. I have had some relief, but very little . My days are pretty much unpredictable . I will try Aloe Water and probiotics . Im excited because its something new! Thanks again Quote Link to comment Share on other sites More sharing options...
BAT777 Posted February 13, 2020 Report Share Posted February 13, 2020 Hi All-I am a very long sufferer of digestive issues. As I sit here writing I am drinking Comfort Aloe Vera. It helps a little but am wondering why on Amazon there are so many negative reviews about Aloe Gold? I have tried every supplement out there and teas plus liquid (herbs). I went for another Ultra Sound today and not sure what if anything shows up again this time and it is like a vicious circle. First test was a barium enema fun fun! That was about 25 years ago so this is how long I have been dealing with IBD. Kefir did seem to help me as well, but where I live now am unable to find it made. Can anyone suggest a legit place to purchase so I can make on my own with Goats milk? Thank you all so much for sharing the good and the bad. Best way for us to kill this beast we deal with. :) Bev Quote Link to comment Share on other sites More sharing options...
flyinsky Posted June 6, 2020 Report Share Posted June 6, 2020 I have had success with a Functional Medicine Doctor. They treat lines upstream before there is a problem. They are excellent and worth investigating. Here is a recent article i read. Have faith. There is relief. Be well. https://drhyman.com/blog/2010/09/16/5-simple-steps-to-cure-ibs-without-drugs/ Quote Link to comment Share on other sites More sharing options...
Laura González Posted July 15, 2020 Report Share Posted July 15, 2020 Hello everyone! Does it make a difference to drink milk kefir or water kefir? I want to give it a chance, but I'm afraid the milk kefir will make my syntoms worse. Also, I haven't tried the Aloe juice but now I will definitely will. Thanks!! Quote Link to comment Share on other sites More sharing options...
val Posted October 21, 2020 Report Share Posted October 21, 2020 On 11/13/2017 at 10:27 PM, IBSnoMore said: AdvertisementHe Hello, your article was very touching! Thank you for all the help! Can you please recommend a good brand of water kefir grains? Quote Link to comment Share on other sites More sharing options...
val Posted October 21, 2020 Report Share Posted October 21, 2020 On 11/13/2017 at 10:27 PM, IBSnoMore said: AdvertisementHe Hello, your article was very touching! Thank you for all the help! Can you please recommend a good brand of water kefir grains? Quote Link to comment Share on other sites More sharing options...
val Posted October 21, 2020 Report Share Posted October 21, 2020 On 11/13/2017 at 10:27 PM, IBSnoMore said: Advertisement Part 1 Hello all, Your stories sound too familiar as I have suffered with this condition for 3 years . However ,I have been symptom free since Jan. '13 and am ever so thankful. My life was miserable, travel, friends, family all bore the consequences of this in one way or another. It is my hope that what this information will improve your quality of life. I believe this was caused by over use of antibiotics due to two case of Lymes disease , two bouts of Giardia , some dental work and a bad burn , all within a period of about 2-3 years. The constant pain and rumbling began shortly after and escalated to endless D , bloating, loss of appetite, severe abdominal pain and horrible smelling gas . After tests for everything , (H. Pylori , Parasites , Hep C , Pyroluria , C Diff , 2 MRI's , ultrasound etc ) , all came back negative , I began to lose hope . That is when I began talking about it with friends . This is not an easy subject to broach but , with time one can learn a dialogue that is more comfortable to others . Two things happened when I did this . First I learned that I was not alone . In fact, almost every time the subject came up, someone in the group had or knew someone with a similar condition . Secondly, people gave me ideas of what to try . The first suggestion came from my Yoga teacher when she suggested I drink Aloe Juice ( Aloe Life, Aloe Gold to be specific ) . I am certain that she was as eager to clear this up as I was - Hah ! ( The 'Plow' was notorious for well , you know ) . I bought some that day and began sipping away( 1-3 onces/day ) . By that evening I noticed a reduction in abdominal pain and by the next day it was nearly gone . Aloe juice will never win any culinary awards , so I would mix it with coconut juice ( the thick creamy kind, not the water ) . I should mention too that I am gluten intolerant and had eliminated it from my diet previous to the onset of these symptoms . I also restrict dairy to Goat milk and unpasteurized Cows milk . It is important that you rule out any food allergies as soon as possible. The pain was gone but the constant D , bloating , loss of appetite were not . Then I began taking probiotics in many forms . VSL#3 , S. Boulardi were very helpful but did not solve the problem . After spending quite a bit of time on the internet researching probiotics, I began brewing Kombucha, water kefir and making saurkraut . The results were immediate . The gas and bloating diminished and my appetite began to return . Life was steadily improving but I still had to deal with constant D. The bouts were less severe and didn't keep me up all night . Then one morning, I drank a cup of coffee on an empty stomach and it just erupted into a cacaphony of rumbling followed by a rapid trip to the bathroom and explosive results . That was it for coffee . On Dec. 10 ,2012 I drank my second to last cup of it ( I tested the theory a month later and had the same result ). My health has improved steadily and by Jan. my GI tract was actually forming stools . It has now been about seven months ( four years actually ) and I can say that my appetite has returned , GI tract functioning correctly , energy level are up and my social life has improved. Travel is no longer anxiety producing ( I formerly carried TP and spare clothes in the car) and I have returned to exercising as before . My diet remains Gluten and dairy free ( the exception being RAW cows milk and an occational lobster roll ) . I also eat Yogurt made from raw milk ( It is heated during the process, so it may be pasteurized to some extent ). Kombucha ( GT dave's,Reeds ) , Water Kefir and real fermented saurkraut ( Bubbies) are all available at health food stores if you lack the time to make it . Coconut water kefir is excellent as is coconut oil ( NOT palm oil ) . The coconut oil is said to repair damage to the intestine , contains no cholesterol , does not produce free radicals when heated (cancerous) and tastes delicious . It is loaded with medium chain fatty acids and has a low glycemic index . It would be naive to think all cases are the same and that everyone with this syndrome will react to these changes similarly . I am relating my experiences with the hope that you will begin to explore the working of your GI tract and how it responds to various foods and stress . Also, I want to give you and others who may read this a valuable tool . Hope . Without it you stand little chance of recovery. Be patient, experiment , keep a food log , read about it , use your intuition ( gut feeling ? ) , talk to people and most importantly , don't let ANYONE tell you this is incurable . Good luck . PS. Most Alopathic doctors are clueless about this syndrome. Restoring gut flora and eliminating offending foods is the solution, not drugs. Hope this helps.Posted 29 August 2013 - 07:41 AM Part 2 After rereading my post, there are a few things I would like to elaborate on . It wasn't clear that I continue to drink Aloe Juice . The relief came quickly but returned when I stopped drinking it. The first time I stopped was when my Dr. asked that I stop during testing . I did and those gnawing hunger like pains came back. Once I had the OK to start Aloe again, the pains subsided . The second time , I didn't actually stop drinking it , but rather switched to another brand , Georges. It looks like water, tastes like water and works like water , which is to say, it doesn't . The pain returned and I went back to Aloe Life which worked once again . The third time was on a kayak trip that I forgot to bring some with me . The pain returned but was relieved when the trip was over and I was able to buy some juice . That won't happen again. Aloe juice comes in several forms , juice , gel ,entire leaf or just the inside filet . In it's natural state , the inside filet is a gel , however after 48 hrs separated from the leaf, it becomes liquid . Therefore , all 'gel' products have added thickeners to make them appear more authentic . Not only is the deceptive but it is absolutely disgusting to drink ! Don't waste your money . I have tried many brands of Aloe and made my recommendations based on experience . I have absolutely NO ties to that company or stand to gain in any way whatsoever by advocating their products. Find one that works for you . I still drink aloe juice but not the Medicinal strength Aloe Life . There is a company called Alo (with a hyphen over the 'O' ) that is appearing in health store and even in some convenience stores that tastes great , really . Probiotics . My strategy here was to get as diverse a population as possible. The are hundreds (maybe thousands) of species in a healthy gut . I used the RAW types that had the most species. Additionally , the Kombucha ,Water Kefir and Sauerkraut draw bacteria and yeast from the environment thus , I believe, increasing diversity . Raw milk with it's live bacteria and enzymes added to this mix. Making Kombucha can be a bit daunting, I would advise you to start with water kefir. It is far easier to make and takes way less time (4 days ). You can flavor it like soda pop and kids will be begging for it. Not so with Kombucha, it's kind of an aquired 'adult' taste . Yes, there is a small amount of alcohol in it but not enough to become impaired . I also neglected to mention that the coconut oil must be the unrefined version . The refined lacks flavor and ,I'm sure , other healing factors . My diet consists of protein,salad and some vegs. Beans, rice, potatoes are very low on the menu . Though I never implemented it , the FODMAPS diet seems to address this well and many of you have experience success with it . Another area that needs to be addressed is nutrition . After spending so much time on the Throne (wink) , one can expect to be dehydrated and malnourished . Food transits your system so quickly that there is little chance to absorb nutrient . And all that water lost . After a bout of D lasting several days , I ask , where did all that water come from ? I know I didn't drink that much ! I supplement with liquid vitamins ( Buried Treasure 55 plus) for better absorbtion. Transdermal (Magnesium Oil) is good too as it bypasses the GI tract . In addition I make bone broth in the tradition of the Weston Price Foundation . There is a lot of great health info there . I know how much you all are suffering and it breaks my heart to read that there are people wanting to end their lives over this . Please don't ever give up hope . There is a solution out there , but it will probably be up to you to find it . Having supportive people in your life is invaluable . Lacking that , using this forum and others is the next best thing . Some Dr's and family members will say 'it's all in your head ' which is frustrating and aggravating but you may want to read about the GAPS diet . Gut and Psychology syndrome . For some of us, it may not just be the foods we are eating, but our thoughts and moods may be contributing as well. If anyone would like help with making Water Kefir , Kombucha or Sauerkraut , please ask. If I could help just one person regain their health , it would be worth any effort on my part. Please don't give up . Keep an open mind and know you are not alone . Don't be ashamed of this , it's not your fault that you have this awful, debilitating condition . Talking about with others is not easy or pleasant but it can be helpful . Develop a rapport that takes the 'Ick ' out of the conversation . Let people use their imagination a little bit, you don't have to be too graphic. Hang in there , be patient, stay focused, and know there is a solution out there and people willing to help you find it . Advertisement can you please recommend a good brand of kefir grains to purchase? Quote Link to comment Share on other sites More sharing options...
val Posted October 21, 2020 Report Share Posted October 21, 2020 On 11/23/2017 at 2:58 AM, IBSmom said: I started making and drinking raw milk kefir in June. My IBS has improved so much that it is practically none existent. I feel like I have had a gut transplant. I also drink bone broth. Traditional Medicinal Ginger Aid tea is also helpful to me at times. My kefir grains flourish, do I have been giving them to others who suffer with IBS and other health issues. Others are being helped, too. My energy level is so much higher. I am living again. My IBS doesn't "own" me anymore. I have had trouble when I attempted to reintroduce gluten and when I have reduced to just 1 pint of kefir. At this point I still seem to need 2-3 pints, but that isn't a problem for me at all. Can you please recommend a good brand of water kefir grains to buy? Quote Link to comment Share on other sites More sharing options...
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