October 31, 20196 yr comment_26643 What will ensure that I am successful at continuing availing of the public transport as an individual on a Disability allowance? Edit I have used trains and buses for years with my travel pass that I got in 2004, as a personal with a Learning disability and in general I would sacrifice my needs and comfort for others as a sign of expression from me for another human-being. I can't get accidentally sucked into and addicted to people pleasing behaviour because of this. Now since a month ago, the hospitalty has diagnosed me with ibs with worse symptoms of stomac releasing continuious fowl gas as well as conspitation problems and am currently on long waiting list for GP at the bottom of the waiting list. I am noticing a smell at the moment from my gas which seems like a normal mild fart smell, despite this, many passengers have gone crazy and many are trying and planning on getting me thrown off the train so they don't have to put up with being exposed to a smell. This is not my fault, as I have very little control over my ibs. So any suggestions on what I can do to protect myself, my rights and my own well-being and chances of gaining employment in the future. Am currently on a 2 year part-time Tourism course outside of my home town. Report
October 31, 20196 yr comment_26693 First of all, sorry for what you are going through. Traveling with ibs is never fun, no matter the mode of transportation. Now, I'm no doctor, but it sounds like xifaxan would work for you if that is available where you are. Unfortunately, if it is not covered it can be difficult because it is not approved for constipation. I would try to find out your coverage for the medicine and go back to where you where treated and try to get a prescription. They have a coupon, but it only works if it's covered or have a prior authorization. I'm curious if you were given any kind of treatment. In the meantime, try to figure out if certain foods or beverages set off your stomach so you can travel comfortably and simply feel better while you wait to see a doctor. Report
October 1, 2025Oct 1 comment_103884 I’m new to this forum too and it sounds very bleak for improvement. I’ve had IBS C for 3 years and it’s all going downhill. I’m chained to the bathroom so can’t even go shopping with friends, take a class or even meet for lunch most days. Just like everyone else here. Is there any hope for improvement? My complication is a very bad back so I can’t sit too long. Even going to the gym is impossible in case something happens. Report
October 2, 2025Oct 2 comment_103901 I believe there is hope for many through a combination of medication and diet. I feel the biggest problem is that it's hard to get a doctor to commit to working with you until you have found a treatment regiment that works consistently. Report
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