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IBS? SIBO? Both?


dtm

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Good morning everyone, I am new to this site and grateful to have found such a caring community. I was diagnosed about 25 years ago with IBS after experiencing severe pain in my upper right abdomen. Levsinex worked wonders to control the flare ups, and going on a low-dose of SSRI kept it at bay and has enabled me to live pretty much symptom-free. Fast-forward to August 2020, I started experiencing periodic loose stools. By mid-September it advanced to full-blown diarrhea several times a day. My doc prescribed a z-pack which did the trick while I was on it, but the diarrhea soon returned once the meds left my system. Stool tests, bloodwork, and colonoscopy all came back normal, and now I am experiencing either diarrhea, loose stools, extreme bloating and feeling of fullness in my upper abdomen, passing of mucus...it's so frustrating! I have been judicious with my diet to avoid dairy, soda, alcohol, limiting my caffeine, and nothing helps. No matter what or how little I eat, my upper abdomen becomes distended and I feel like I ate a massive meal. I recently had a UTI and went on a sulfa-based antibiotic. Simultaneously, my GI doc put me on methscopolamine. My symptoms subsided during this time, but within two days of ending the antibiotics, the diarrhea and severe bloating came back with a vengeance. I continued taking the methscopolamine, but it was clearly not working so I stopped taking it. My doctor now suspects SIBO. I will do the breath test next week and pray I get answers. I would love to know if anyone has had a similar experience.

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Jeffrey Roberts

Interesting...

Have you considered trying an industrial strength probiotic like Visbiome?

Also, has a bile-acid sequestrant been tried like Questran (cholestyramine)?

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At this point, none of those things have been tried or suggested. I like the idea of ruling things out before trying any new meds. I had been taking Align, but need to be off it for a week before I can take the SIBO breath test. 

 

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Jeffrey Roberts

I never found Align very effective in a flare-up state. I found Visbiome to be more helpful.

Sometimes trying a new med helps physicians rule out conditions. I believe Questran might help you in that regard.

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  • 2 weeks later...

I took the Lactulose breath test this week and heard today from my doctor that it came back "very" positive for SIBO. He's prescribing two antibiotics, Neomycin and Metronidazole, to be taken over 14 days. I am happy to have an answer and truly hope this treatment works.

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  • 2 years later...

Hi I'm a new joiner. Thought a forum might be useful. I have SIBO M diagnosed 2 years ago but had been suffering for 10+ years.  Had a course 7 days of Rifaximine but symptoms quickly returned. Recently been with a functional medical nutritionists and after a comprehensive stool test and another Breath test,  was put on berberine, neem, caprylic acid, S boulardii, guar gum, glutamine, NAC , similase. I also have a long -term UTI so am also on antibiotics and Hiprex. After 1 month the methane had gone ( and still gone) but my H levels are through the roof. I have excessive bloating, very uncomfortable, several bathroom visits per day and generally feeling awful. Last week I suggested I came off those tabs and tried oregano oil. Now feeling quite a bit better but H levels still high. Just cannot seem to kill the H producing bacteria. Nutritionist is nice but to be honest not overly helpful. Costs a fortune every time we talk, 170£ + and she just agrees with what I suggest, so basically I need to do this myself.  

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