Opportunities for IBS Patients to Have Their Say

[Jeffrey Roberts]

 

I am so pleased to be able to share several opportunities with you to get involved as an IBS Patient. The first pays $500 to two individuals who have IBS-C. The next is an online non-medical research study which anyone in the world can participate who has recurrent abdominal pain, diarrhea, or constipation with or without a specific diagnosis for a cause. Lastly, we are gearing up for World IBS Day on April 19, 2023 and we have an exciting opportunity for you to share your IBS success stories via video and make a difference for someone who has IBS and feels there is little hope. 1) Share your IBS-C story for an instructional video and be paid $500     (US patients only) Patients with IBS-constipation in the United States are invited to share their story in a video recording session about being diagnosed with IBS with constipation and how they cope with it. Their video will be incorporated into an instructional video for healthcare professionals. Questions you'll be asked will be about your IBS journey and quality of life, any access issues you had to getting diagnosed and your relationship with your core medical care teams. Two patients will be selected and compensated $500 for their time to be interviewed. Each must have a computer with a camera and wifi or a computer directly connected to the internet and 90-minutes available to be interviewed. If this is something that you would like to do, please send an email to ibs@ibspatient.org along with a very brief description as to why you would like to do this. 2) Participate in a 6-week online study     (World-Wide patients) Charlotte Lane is a Family Nurse Practitioner (FNP) who started her dissertation study for a Ph.D. in Mind-Body Medicine through Saybrook University out of Pasadena California.  She would like to recruit 25 participants anywhere in the world for a 6-week study who have recurrent abdominal pain, diarrhea, or constipation with or without a specific diagnosis for a cause. The non-medical study will assess the effects of a brain wave entrainment application on the symptom severity of IBS. As well, she will look at how anxiety and depression relate to outcomes. Participants will answer questionnaires before starting and then at the end of six weeks of listening to the app. There will be a group that receives meditation music as part of the study. This study has been approved by Saybrook University. If you would like more information you can contact Charlotte at clane@saybrook.edu or visit www.ibsmindbody.com. 3) Share your IBS success story for World IBS Day - April 19th     (World-Wide patients) World IBS Day every April 19th, raises awareness about individuals living with Irritable Bowel Syndrome (IBS) or knowing someone who lives with IBS. We are asking you to share your success stories with IBS by preparing a 1-minute video which answers these questions: Of all the IBS treatments you have tried, what has been the most successful? In your opinion, how can gastrointestinal providers (Doctors, Nurse-practioners, Dietitians, Psychologists, Social Workers) be the most helpful in IBS care? If you could provide words of wisdom/advice to a person newly diagnosed with IBS, what would that be? A collection of videos from patients will be selected to be part of an IBS Experience awareness campaign for IBS on World IBS Day 2023. The IBS Experience project and awareness campaign for World IBS Day is brought to you by IBSpatient.org, TuesdayNightIBS and Kate Scarlata MPH, RDN, “For a Digestive Peace of Mind, LLC.” If you have any questions please email worldibsday@worldibsday.org or visit worldibsday.org/ibschat to submit your video.