Hello everyone,

Let me introduce myself, briefly: I am from Czech rep., (legally) 59yrs old, male, used to be an active outdoor sports enthusiast, nonsmoker, teetotaler.

Apart from my two dominant/major problems:

a) 2017 diagnosed with a brain tumor (Lymfom B), underwent a succesfull chemotherapy (Matrix without Rituximab), but suffering a premature aging as its after-effect (my real bio-age closing to 75 with all its implications and irreversibility).

b) Decades long (ie. not induced by chemotherapy, preceeding it) sleep deprivation – incurable, thus suffering faster than average deterioration of whole body and soul.

I was 2025 diagnosed/confirmed (via genotype TNF SF15 AG in my saliva) with severe IBS (-C per my daily observations) with all its years–lasting symptoms being much worse than usual due above a) and b).

So I am joining this community to seek any advice/help to relieve me (at least partially) from its crippling effects (nowadays I feel almost 24/7 like dying) . Any suggestions welcome. Thanks,

Pavel

Aftertought (=forgot to mention): IBS in my case manifesting itself a bit extraordinary, apart from "standard" bloating, burping, farting, heartburn and phantom pains in gut I suffer with severe/unbearable BMS (burning mouth syndrome). Anyone else suffering the same?

Should you wish to prefer an email to public statement here, pls do not hesitate to email at pavproch (at) yahoo.com. I am becoming desperate, any help will be heartily welcome.

After another half a year of unbereable suffering (as anything seems to by of any help/relief from the symptoms) I am resigning somehow... but what I dread (now) most is their creeping evolution ... is there anything (I am missing at the moment) to do/take to suppress the development from bad to worse and worse still?

Besides, my body reacts quite a lot differently from the "mainstream": Tried (widely recognised and proposed) LowFOD diet and my symptoms became much worse, while when I overfeed myself with (LowFOD forbidden) un-healty food (namely fatty pork, unfermented lactose and similar) my symptoms are getting less crippling... wtf?

Well, another bunch of fails: Tried "miraculous" Spanish IBSolution probiotics sachets (more than 6 weeks daily) to nothing, tried a month with widely reccomended Dicetel 100mg (pinaverium bromide) to the same ... nothing, the same nothing with Rx Gapulsid pills (cinitaprid), Rx IBS helping local probiotics Mutaflor did not work, too.

And, consequently to all those fails the IBS symptoms are still getting worse each day and night.

Opening this website sooner today my eyes came across IBgard highly appreciated there, unfortunaletty it seems to me it being imposible to getting it from US overseas, so I will try (hopefully) an equivalent of ultra-purified peppermint oil available here in CZ/EU from Swanson (btw, originated in US, too).

Anywhere I go (searching for any IBS "promising" cure) there is an introductory statement as " IBS is NOT life-threatening". I am getting afraid I will become the first to prove contrary, it is UNBEARABLE!

Peppermint Oil failed. As everything I tried so far. Trying another off-shot: Debutir (PolPharma), but expecting another placebo-effect.

Debutir = probably very small refief, if any = almost unidentifiabe and moreover temporary = will not continue.

Another med found: Slovenian Sensilab: IBSfar - one testing package already consumed with slight effect = trying more and for longer.